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JER2
Fanatic

Reged: 11/30/10
Posts: 72
I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? *DELETED*
      #253367 - 12/01/10 11:06 PM

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srchanfrans43
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Reged: 09/12/10
Posts: 44
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? *DELETED* new
      #253369 - 12/02/10 12:28 AM

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JER2
Fanatic

Reged: 11/30/10
Posts: 72
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253379 - 12/02/10 10:57 PM

I would like post a someone like a good doctor, but I see that doctor Bob is those doctos that confide only in the tests, and he thinks that cases like mine are psychiatric problems and i am sure that people are dying whitout a diagnosis.
Read the last link that i put, there is a little studies about seronegative but infected persons.

In the body was a doctor named Brian Conway he seems a person with comprehensive aproach, read this response"

"I would want to make sure that the HIV antibody test you had was a correct result. If it is, this is a definitive diagnosis of infection. I would also be interested in seeing your CD4/CD8 ratio, as we often see people who are infected with HIV and have a normal CD4 count, but a lowered CD4/CD8 ratio as an indication of some level of immune disease",

He says in other response that CD4/CD8 inverted is seen in the hiv positive people and rarely is because other retrovirus, but he doesnt say if is posible medicate someone with this test.
In my country the doctors know minus that the virus, they think that I am inventing my symptoms. Here is only a woman doctor that think in a strage mutation, but she doesnt know how help me.

Please if you have other idea its welcome, i am very near from sucide because i am really sick and i dont support more.
I work only because i have 2 children that need me, but almost i cant, becasue the fatigue and discomfort are high.




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srchanfrans43
Regular

Reged: 09/12/10
Posts: 44
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? *DELETED* new
      #253390 - 12/03/10 09:55 PM

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Sanhanfrans and JER..... new
      #253391 - 12/03/10 10:10 PM

I'm so glad the two of you have found each other. It saves us all the time of trying to reason with either of you and instead can grab our popcorn and enjoy the show the two of you are putting on.....two HIV negative worried wells that REFUSE to accept test results or what their doctors tell them, over and over and over and over again. You two are so well suit for each other and so deserve one another.



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JER2
Fanatic

Reged: 11/30/10
Posts: 72
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253392 - 12/04/10 12:05 AM

Hi,

Tomorrow i will have an appoitment with my doctor, i think that the next month i will have a biopsy of 1 of my several nodes, but, its almost sure that it biposy will not reveal nothing
then I will ask to my doctor that she help me to intercede for to receive antirretrovirals, but i see this very dicfficult, it seems crazy: receive meds for a ill that your tests say you dont have, but no matter, i think that we could be set precedents, although in my country its little likely.

I know that the some links are old, but, today you can surf in the body and you can see very much people with similar cases like the mine, contact with positive person, a tipical ARS, persisten symptoms in the time, cd4 low, etc etc. moreover, like today, ten years ago the doctors believed blindly in the tests and they were wrong. Other thing if we know averything about hiv, maybe, we would have the cure.

In the other hand, i dont think in i dont have antibody, i think in something like a mutation, or a strange strain. My problem is that when i knew the girl´s status she dissapeared, never i saw her newly.

I would like post other meds, but i dont have much money, i fear that they will say me the same: you are crazy or test for other ills, but which other ills.

I will be post, you too please.
Regards

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srchanfrans43
Regular

Reged: 09/12/10
Posts: 44
Re: Sanhanfrans and JER..... *DELETED* new
      #253393 - 12/04/10 12:39 AM

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iknowigotit
All Star

Reged: 02/08/10
Posts: 77
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253395 - 12/04/10 04:30 AM

Jer2,


Sorry to hear about ur current situation. I can honestly tell you how I can relate to what ur going thru. The anxiety n feeling of no one really wanting to help you out. I am also suffering from swollen nodes all over my body ever since a risky exposure. However in my case I forced the girl to go and get tested n according to her it was 4 months after her last unprotected sex n her results where negative. She tested 1 month after our exposure. I however don't believe in these HIV test. I agree with you on. Dr. Bob, he is a naive and ignorant doctor for telling someone that they don't have hiv after an exposure to someone confirmed HIV positive and suffering from persistent symptoms n low cd4 counts. Unfortunately even here in the US doctors also block out visible symptoms for a result of a negative HIV test knowing very well that HIV is a virus that mutates very often n therefore has been classified into several subtypes n viral strains. I really wish there was more I could tell u, it hurts to read of a fellow human being having to go thru this just because doctors are to lazy to think outside the box. 

As far as Izabella aka Esmeralda, just ignore her. Since all this started I have talked to several HIV positive folks and even have them qs friends on my Facebook. However I don't understand why Esmeralda is the cold hearted bitch that she continues to be. My question again to u Esmeralda is if u have such a hard time with WW why don't u stick to the positive forum. Maybe someone in that forum will put u in ur place already. I was always brought up not to hit women but for some reason after reading the way u reply to people I feel like  I would give u a mouth shot If I had the chance. It's mean to say but I only speak the truth. Go take care of ur husband or something. I don't care what that other guy that's also on this forum that is starting to reply to post in the Esmeralda fashion has to say either. He was a worry well just like everyone else on this forum. Now all the sudden he thinks he has XMRV n he thinks he can say whatever he wants to anyone. Honestly stay away from this forum both of u. I think he majority would agree. I ain't a doctor just like neither one of u two. but instead of trolling these forum looking for victims to insult just to make myself feel better, I actually have been doing some research on HIV to realize there are alot of cases of negative folks with low cd4s n persistent symptoms after n exposure. Guess what dumb asses there is more to HIV than either one of u two can put together. But keep being the way u are if it continues to make ur miserable lifes happy for the monent. To all the people experiencing true symptoms after an exposure I urge u not to stop looking for the answer to ur illness. I am not saying it is always HIV. But let's be honest from the millions of new HIV infections that occur very year do u really believe that HIV test pick up all the new infections? Then u must still believe in Santa claus n the tooth fairy. All HIV test packages state this test does not test for all strains of HIV. Next time u get tested ask the doctor or nurse to allow u to read the fine print. I'm not here to scare anyone as i am going thru my own lil dilemma. But facts are facts. 


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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: Sanhanfrans and JER..... new
      #253397 - 12/04/10 07:36 AM

Sanhanfran - You ID doctor didn't tell you to keep testing to follow through. He said if you show up postive at this point you would be a case study.....meaning you're negative and that's not going to change.

Of course I guess you'd have to use your doctor as an excuse since you alreay told everyone you had a 'finite' testing plan and said with the last test you took that if that was negative there would be no more of this nonsense.

So much for that. Yep, you've turned into one of those lost worried wells. I see pain and lonlness in your future. Do youself a favor....and I really do mean this with good intentions and I am sincere. Find yourself a mental health counselor that can help you. At this point there is no doctor, real or viritural, no forums, no research, no more negative test results that will help you. You're too far gone. I'm sorry you let it take over your life.

PS If you hadn't noticed JER is from El Salvador. Suggesting extensive medical procedures to try and prove he has HIV when he clearly doesn't (last 3 most recent testing) is probably not a viable course of action. You would have been kinder to tell him the truth. His tests show he is conclusivly negative and just like all the doctors have told him. He does not have HIV.

Not very nice of you to try to recruit people into your own little warped world just so you have company.

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253398 - 12/04/10 07:51 AM

I stick to this forum dumbshit because someone has got to remain the voice of reason among you raving lunatics. LOL

Every single one of you in this thread have conclusively tested negative way beyond the window period but you each refuse to believe your doctors or your tests results. Those little ducklings are signs of mental health issues, not HIV. Why do you any of you think you need to keep interjecting your fears, bias, prejudices and major OCD issues on the readers of this forum? All you do is bitch and moan about how nobody believes you have HIV. So go do it elsewhere, like with all those positive friends you have.

I really don't care if you want to call me a cold hearted bitch or not. The fact is that you and your buddies have no quality of life and you won't begin to be able to get any peace, happiness, joy, or comfort back in your lives as long as you want to fight the entire world to prove that you have some mysterious case of HIV.

Roma finally let the whole HIV thing go and what happens. He gets somewhere. He's now got a dx, and a plan. More than any of the 3 of you have. But you just go ahead and keep chasing after HIV. Hope you don't drop dead from whatever you may or may not really have.



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iknowigotit
All Star

Reged: 02/08/10
Posts: 77
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253405 - 12/05/10 12:09 AM

Esmeralda, I am thru with you. I Understand that ur programed to continue promoting a three month test as conclusive n that nothing is going to get you off from that thought. I will agree with you most people will test poz by 3 months or 12wks I ain't arguing that point. What I have a problem with is the way you answer people's concerns. They are here because they are scared and may not have no one to turn to. But instead of giving people an honest answer n leaving it at that you go on to insult people. You mock them n make people feel guilt because of decisions that they made. WW are in a very bad state of mind already n don't need any more bullshit to be added to their problems. As for people like Jer2 or myself we have health concerns that no medical professional has been able to assist us with. For ur information I have seen a therapist n was diagnosed with hypochondrosis which is different from hypochondria. My life has not stop due to my current HIV concern. Just this past summer I spent the whole time with my son which visits me from FL. And I purchased 2 motorcycles which I have been enjoying to the fullest. But as far as symptoms go they are still there n still no explanation. Did u even bother to read the 1st link that jer2 included on one of his post. Well it's a link from thebody.com n it's of an HIV infected women that does not test positive on HIV test. Well what do u know? There is proof of seronegative people with actual HIV infection that are not showing up thru test. Need more proof? Cause there's a few more post on thebody.com u might want to read. So what's the whole point of this post? It's either stay off this forum of just be different in ur way of handling replies to peoples post. That's all I am saying. I as well as others appreciate the fact that someone that is living with this disease can take time off from her day n assist with concerns but let's no push it n start bullying people as you like to do. 

To Jer2, that was not my original post but some moron that copy pasted n congratulated dr. Bob for his inaccurate response to me. But the bottom part is something I wrote back in May of this yr I think. I am Hispanic just like you. I am Mexican n I appreciate the fact u were able to post your current health issue. It's important for people to know that there is something else going on that is not being understood or explained to us by our doctors or government officials. I myself have been seen by 6 HIV specialist, I've had numerous test done out to 11mnths n yet only getting worst. I can still do all my normal activities but how long before I get sick or get an OIs. I will continue to work with doctors to see what is going on but my money is that this is HIV. I am prepared to face that fact but I don't want to just die in vain when there is treatments available. As far as the situation with ur son I am sorry to hear that n I hope everything works out for the better n hope ur current health concern gets resolved sooner than later. Hey by the way how did u find out the girl u slept with was poz? Did she tell u or someone else told u? 

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Jackie__Blue
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Reged: 01/20/07
Posts: 1186
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253406 - 12/05/10 12:36 AM

"But instead of giving people an honest answer n leaving it at that you go on to insult people. You mock them n make people feel guilt because of decisions that they made. WW are in a very bad state of mind already n don't need any more bullshit to be added to their problems. "

WHAT A FUCKING CRYBABY! I only mock you assholes that can't accept continuous negative tests and then want to whine about how nobody understands you. WHAT BULLSHIT. After all this is an HIV website, not "I have some mysterious disease, but keep testing NEGATIVE FOR HIV!! site. Move on. You don't have HIV. Find out what you do have, but leave us the hell alone. You don't have HIV, so how the hell do you think that continuing posting here over a non issue for you is useful for you or anyone else. You're just taking up space sweetie. Nothing more.


Do you seriously believe that those that are living with HIV should have to put up with the likes of you? Seriously. Are you for real. You are just not that special to expect that someone with HIV is going to buy your BULLSHIT for two second. GET OVER IT. Your nothing but a wanna be pozzie that's pissed cause he can't get into some club he thinks he wants to be in, which just goes to show you are only some guy with serious mental health issues that is too damn afraid to address those issues.

I guess for you it's much easier to attack someone that speaks the truth than it is to look within your own self.

ROTFLMFAO. What a fucking little pussy you are.

....and as two your pointed attempts to bring up the fact I used to be Esmeralda. Big deal.....I've said before...I've been Esmeralda, Jackie_Blue, Anon-One, and even an Anon back in 2000 or 2001. Changing names is as easy as changing my hair color. So what?

Just know that every time you come on here, I will be here to bring up the truth about HIV and testing and know that I will never have patience with those that insist they should be taken seriously when they have repeatedly tested negative....no matter what persona I choose to apply.




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iknowigotit
All Star

Reged: 02/08/10
Posts: 77
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253407 - 12/05/10 01:06 AM

"Esmeralda"

You really are the ignorant. When was the last time I came here to post asking for any advise from you. I posted one question on this forum. It just happened to be that u posted a reply in ur classic manner. I'm a cry baby? Everytime u reply with ur stupid ass ignorant comments u really send out a vibe like ur mad at the world for the fact that ur infected with HIV. I ain't asking you to sugar coat anything. But again you just proved what I said on my prev post, ur programed to say the same shit time n time again. Do u really read what people post before u just say, it's not HIV, no risk, 3 month conclusive. I don't think u do. Or atleast halfway after reading someones post ur already thinking of the next stupid shit ur going to try to say to someone to make them feel worst about their situation. The only two people on these HIV forums to act this way with people are you n this other asshole aidsmeds n medhelp forums. Seriously what is ur problem. I think while the meds are controlling ur HIV ur "bitch" viral load must be sky high. You really are just a bad person all together. Ima tell u what I will take care of replying to people. I am as qualified if not even more than you to answer peoples concerns. Atleast they will get someone that can understand where they are comin from. Really just stick to ur all exclusive without a poz Test HIV club that u mentioned. How stupid do u think we are to actually want to be infected with this disease like it's something cool nowadays. But again that just shows ur ignorant side so like I said I'm done with you. I'm surprised Bartley allows u to insult visitors of this forum the way you do.  Ur right this is an HIV site and that's why I mentioned ur dumb self go n review some of the post from ask the doctors since I believe u might learn something new n leave ur current way of thinking behind. 
Me a crybaby? I don't think so, u a cold hearted bitch? Yeah I believe so. 

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rock_on
Regular

Reged: 11/01/10
Posts: 33
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE? new
      #253409 - 12/05/10 09:33 AM

your most recent test at 18 months is negative. your ok! maybe your symptoms are to do with something else :/

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: I AM INFECTED BUT, WHY THE TESTS ARE NEGATIVE?
      #253410 - 12/05/10 09:43 AM

You know Esmeralda was only another name. If you want to make some sort statement over what I choose to call myself, then do it right. I was first known as Jackie Blue. But you can call me Ms. Blue.

You have no idea the harm you and your kind cause. You aren't helping anyone. How could you? None of you can even help yourselves. All you do is enable people in their psychosis over HIV instead of trying to push them to realize they don't have HIV, thus freeing them to keep looking for the root cause of their issues.

Put a few of you together and your unwarranted, unchecked fears only serve to double down on the myths about HIV that the community has spent so many years fighting. You swear infection by ways long proven to be ineffective toward transmission. Some of your kind have had legitimate exposures, yet refuse to understand that exposure doesn’t equate to infection and instead of thanking your lucky stars and moving on after a conclusive negative test result will INSIST hysterically that you are infected. By what?

Not HIV. Your kind wastes too much money over needless tests way too much and in all that testing there is NEVER any HIV to be found, yet you still believe. Much like a child’s complete belief in a mythical character no matter how much reality shows it is impossible for the character to exists.

You spend countless hours researching strange anomalies that you don’t really understand but post as ‘proof’. Too listen to your kind, people would have to think that HIV is some magical disease that plays hide and seek with the science of testing. HIV is no harder to diagnosis than diabetes or strep throat . The fact your kind can't accept it, doesn't make it any less true.

You and your kind's absolute inability to understand and believe simple science, only causes those that are posting with legitimate concerns and are anxiously waiting the window or have recently tested to get caught up in your hysteria instead of moving confidently forward in their lives. I personally don’t believe you should be able to cause that type of fear in others without someone addressing the fact people are being scared by a long term worried well that is bat shit crazy.

You're not the first, won't be the last. I've been dealing with your kind for the last decade. I used to be nicer, but found that only got me drawn further and further into the hysteria that is the long-term worried wells. So yep, I'm not even trying to help you all understand your misguided ways anymore, flying to the moon would be easier. I just practice damage control.

You all want to have mental breakdowns over HIV when you clearly don’t have it, fine do it. Just do it elsewhere. Nothing says you can’t set up your own website. www.I HAVE A MYSTRY ILLNESS AND EVERYONE THINKS I’M CRAZY.COM


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