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losangelesman
Newbie

Reged: 11/04/09
Posts: 3
Please Stop the Nightmare! HELP!! (very long)
      #248289 - 11/05/09 12:22 AM

This is very long but I need to tell my story as I am living an absolute nightmare right now. Been a very healthy straight man all of my life but have had some on again off again sex addiction issues where I acted out with men. I have learned through therapy that this acting out stems from my childhood molestation and wanting to punish myself.

I have never felt sicker physically or mentally in my life as I do right now. My life is in total crisis and I need HELP. 98% of my acting out contacts have been "oral on me" which puts me in a very low risk area, but there were 2 times in my life where I went into a higher risk situation. I am almost certain I have HIV right now, but my test results have me very very confused. I have seen sooooooo many doctors/counselors/specialists who tell me I am 100% fine and most of this stuff is Somatic and stress related, but I am far from being fine. Some of what I am going through could also be symptoms of PTSD, but again... most of it isn't. Obviously I am PRAYING for a miracle right now but the physical evidence is too strong for me to believe that I am going to make it through this with my health intact. :(

I am 33 and had 3 contacts between July (1) and August (2) of this year, the contact in late July being the one I am the most worried about. Aug 20th was my last contact.

About 1 week after my last contact I developed a pretty significant red rash on my right leg that I got rid of with Neosporin...took about a week or so to go away.

Then I woke up on Aug 30th with some small red sores on my penis, very painful and sensitive to touch. MAJOR PANIC. Went to a skin doctor and he gave me some antibiotic cream and they went away after a few days.

Sept 1st I developed a strange flu-like illness that didn't make me vomit or anything...it just gave me the sweats/chills and my temp went up a little bit. Took Tylenol PM to go to bed and that worked fine.

Went in for a swab test same day - NEG

Sept 2nd...flu like symptoms come back in the afternoon...MORE PANIC. But the really scary thing is that I immediately felt like something strange had entered my brain.

ABOUT 2 WEEKS SINCE LAST CONTACT

Sept 3rd go in for ALL STD tests and PCR HIV test with a Urologist....all NEG

Next few weeks I have...

* EXTREME insomnia. No matter what I took to sleep, it didn't
matter. Almost like I was being shocked awake.
* Feeling like i have bugs/worms crawling in my brain (is this
normal with initial HIV infection?). Feelings calmed down with
Xanax..about 3 pills per day.
* Feeling like I had something attacking me from the inside. Almost
like I had eaten a bad hit of LSD laced with poison
* Sweats during the day and especially sweaty palms
* Feeling disconnected from reality / mild hallucinations / Trouble
concentrating/remembering things
* Extreme tiredness for a few days
* Some blood in my stool (this happened about 6 times in the last 2 months.... gastro guy found a small hemerroid and bleeding has stopped since ive used cream)
* Urinary issues (go too much... or feeling like I had to go, but couldn't)
* Strange little sores in my cheeks that looked like canker sores, but did not hurt at all and went away quickly. This has happened a few times in the last 2 months. Most of the sores are more like little black spots.
* Pimples that broke out on my upper back, neck and shoulder blades (could be stress related for sure)
* Strange little red rashes/splotches that would appear for an hour or two, then go away (stress or maybe not)
* Some dry skin patches (psoriasis?) on my arms

3 WEEKS LATER and 5 WEEKS SINCE LAST CONTACT

Go back in for PCR test #2 with same Urologist which he says is definitive after 5 weeks since last exposure.... NEG.

I feel very happy and clear headed for most of the day, then the Neurological/Brain issues come back. F*CK! I see a Neurologist and get an MRI, and he says my brain is 100% fine.

Few more weeks pass by...

* Waking up feeling like my arms and legs were completely numb (like when you fall asleep on an arm)
* More being "shocked" awake
* Some night sweats
* Recurrence of one tiny blister on penis that is sensitive but goes away after 4 days (this happened when I was in a mental hospital for nervous breakdown....great timing)

I go see a Psychiatrist and I am now on a regimen of Wellbutrin, Seroquel, Gabapentin and less Xanax than before (2 pills a day instead of 3)

6.5 WEEKS SINCE LAST CONTACT

I say F it and take my 2 previous test results from Urologist and go find an Infectious Disease Specialist at the best hospital in LA.

Tested again for all STDs and PCR, DNA/RNA, T-Cell count, etc. Again all tests NEG and the T-Cells are normal (1000-ish)

Last few weeks have gone by....

* Have had some kidney/lower back pain in the last few days
* Still wake up feeling numb in body
* about 6 hours of sensitivity on tip of penis that went away
* Still have some night sweats but much less frequent
* Still have days feeling disconnected from reality and the same memory issues, mild hallucinations, etc.

Now my confusion has to do with the fact that I thought these new PCR tests were 99% accurate. Its not like I am hoping for a positive result, but I just don't understand how nothing was picked up considering everything I have been through in the last 2 months. I know that there is a window period and I need to get tested again in a few weeks (3 month mark) and again at 6 months. But then what is the point of taking a PCR test when its supposed to let you know early if you are infected? I guess the HIV antibody test is the only way to REALLY know whats wrong with you. If they still come back NEG at 3 and 6 months and I STILL feel sick, then I have some horrible mystery STD and I might as well jump off of a bridge.

I just want this nightmare to end and if there is a god out there, please please please have mercy on me. Every single time I have to wait for a test result I see my entire life flash in front of me and i have had to endure this 3 times now. Absolutely Horrible. I can't take the mental stress and agony any longer. I just want to feel better and be spared. Its like I am living the Sex Addiction version of Requiem for a Dream.

So again GOD, if you are out there...PLEASE HELP ME!

Edited by losangelesman (11/05/09 01:36 AM)

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: Please Stop the Nightmare! HELP!! (very long) new
      #248298 - 11/05/09 03:34 PM

From what you have said I just don't see your behavior as that of a bonafide sex addict and I don't know why your counselor would say that it is. Having sex with another man is not a sex addiction.

Here's a thought. Find a decent counselor. Deal with the issues from your childhood, which by the way has nothing to do with your sexuality now. Accept your bi-sexuality and quit punishing yourself over it. God will love you just the same but more importantly you might just learn to love yourself.


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Jambasher
Newbie

Reged: 10/12/09
Posts: 3
Re: Please Stop the Nightmare! HELP!! (very long) new
      #248422 - 11/15/09 08:36 AM

Sounds VERY familiar to me, though just more extreme. check out the thread titled "for hiv- people with long lasting symptoms".

I hope you will be fine.

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losangelesman
Newbie

Reged: 11/04/09
Posts: 3
Re: Please Stop the Nightmare! HELP!! (very long) new
      #248450 - 11/17/09 01:59 AM

I will accept it if through my extensive therapy I realize I am Bi-Sexual. Nothing wrong with that. I still don't think I am...but its the last thing I am worried about.

I just took my 3 month tests for a few STDs and all of the HIV tests and again - Negative.

Symptoms lately..
*Having vision problems (blurry & double visios, halos around things, sensitive to car lights while driving at night)
*Trouble concentrating, memory loss, difficulty completing complex tasks at work
*Disconnected from reality at times
*Had a regular 3 day cold that came and went really fast...but with night sweats for 2 nights (uggg)
*New folliculitis bump on my chest that was pretty red looking for about a week but has died down
* STRESS TO 14......I am so freaking sick of this.

I'll send another update later

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losangelesman
Newbie

Reged: 11/04/09
Posts: 3
Re: Please Stop the Nightmare! HELP!! (very long) new
      #248451 - 11/17/09 02:02 AM

thanks for the reply. If I make it out of this in 3 more months and start actually feeling better and BELIEVING medical professionals/tests.....Then God truly does exist.

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: Please Stop the Nightmare! HELP!! (very long) new
      #248454 - 11/17/09 11:02 AM

From what you said before it sounded like your therapist subscribes to the Ted Haggard counseling format. "god will cure me of my sinful behavior." Of course I guess your don't really believe all those GOD references you have made, since you beleive that if you continue to test negative there is a GOD. What's that suppose to mean for all those that haven't tested negative? God doesn't exist for them? LOL

But see here's were your obsession over HIV shows. You have 3 months negative. Any more 6 weeks is considered damn close to conclusive and 3 months IS conclusive. You already have tested HIV negative, yet you persist in this fantasy that you are infected. I guess it's easier to a)use HIV as a red herring for what is really the issue, or b) you got nothing better to do with your time.

However since your type always will come back with some reason that they are different and HIV must therefore still be a concern no rational discourse can be achieved. So I wish you well with your issues on sexuality and the fantasy of HIV.

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