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Symptoms vs. testing history - what should I do?
#223989 - 01/31/07 07:53 PM
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I am trying desperately to find some closure to an ongoing concern I’ve had about possibly acquiring HIV. I would appreciate your advice.
In early March 2006, I had an unprotected sexual encounter with a woman whom I met in a bar. We engaged in both vaginal (about 10 min.) and oral sex (about 5). About 3 days later, I began to feel very tired. The day after that, I came down with some harsh exudative tonsillitis, along with a fairly high fever. Went to the doctor who did a strep test – it was negative. I was put on a 10 day course of antibiotics and prednisone. While taking the medication, I had a couple evenings of night sweats, but felt better after a few days. About four days of completing the medication, I came down with another round of exudative tonsillitis and fever (about the same severity as before). This time I went to an ENT, who gave me a monospot test – negative. He put me on another 10 day course of antibiotics (a stronger one) and prednisone. Had a couple of night sweats again, but not as severe as before. My ENT ordered a CBC and it came back with a WBC of 17k, but a 6% lymphocyte count (about 1020-1050). Again, I felt much better after a few days of meds. Near the end of finishing the second round of meds (now three weeks post-incident), I had a day of pain behind my eyes with slight dizziness and nausea. A few days later, I started seeing waves/floaters in my field of vision. I went back to the ENT for follow-up to my tonsillitis and he then diagnosed me with nasal polyps. At about this time (4 weeks post incident), I began to consider the possibility that what was going on was related to my unprotected encounter. I had lost about 15lbs. (from 175) during the two rounds of tonsillitis. I was able to locate and contact the woman whom I had the encounter with. We spoke several times over the course of the next two weeks and each time she said that she did not have HIV. My last call with her ended no to great – I expressed doubt in her veracity and she said “You’re so convinced I’m HIV positive. I’ll tell you what – you keep testing and testing until it turns positive, but it won’t be from me.”
At the end of May, I went to the eye doctor for my vision problems and was diagnosed with a vitreous detachment. It was at this time (about 8 weeks post) that I began HIV testing. Over the course of the past 10 months, I have been:
• Ora-quick Advance 1/2 rapid finger (blood) tested about 10 times (at the 8, 12, 15, 18, 25, 27, 29, 34, and 43 week mark) at a local HIV clinic – all non-reactive/negative • Orasure Oral swab HIV Antibody test at the week 25 mark – non-reactive/negative • Blood draw HIV ELISA test by my GP (Quest), private service (Labcorp), and local HIV clinic (at the 19, 23, and 25 week mark) – all non-reactive/negative • HIV/DNA by PCR test by a private company (Labcorp) at the 23 week mark – non-detected • HIV/RNA by PCR by local HIV clinic at 8 months – non detected (under the reference range of <400 copies) • My most recent WBC count was (August 30) down to 4300 with Lymphocytes at 36%
Over the course of the past 10 months, I’ve had some other troubling symptoms, such as: fatigue; what looks to be like minor folliculitis on my scalp (sorry for being so graphic, but when I pick at the bumps, I notice a very small hair in the pus); very senistive skin, especially after working out; skin in neck, face, and scalp areas in general is redder – when scratched, and an increase in small red spots that don’t go away. Also, for about the last three months I’ve experienced an on/off tingling/burning sensation on my tongue, waking up each morning with a white pasty film on it, and have moments when my mouth is very dry – what spittle I can muster resembles white foam. During the last week of December, I had a week of mucus in the stool. And now this week was diagnosed with a UTI (discharges and extreme burn while urinating). All of these things taken all together, in a relatively short time, suggest to me some immune dysfunction.
This year I've been sick more than any other recent years conbined. Prior to this year, a broken wrist - that's it. Despite my testing history, I can't shake this fear that HIV may be causing my ongoing problems and that the testing may have missed it. Is there any test I can take now that would be completely conclusive. and will help get me over the doubt once and for all?? I would like to trust the testin, but I've read recent personal stories on several websites where folks thought they were ok at the 3, 6, or one year mark, or thought their risk wasn't a risk, but were eventually diagnosed positive. I'm trying to determine whether I should keep testing "just in case." Any advice would help. Thanks for understanding.
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shayshay
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Reged: 01/28/07
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Posts: 11
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Trying to be, your mind is sick like mine, you don't have HIV JUST THE OBESSION. I'V DONE THE SAME THING TO PEOPLE JUST LIKE YOU.KEEP ASKEING THEM, OVER,OVER, OVER,OVER, OVER,OVER,OVER,OVER, AND OVER AGAIN IF THEY HAVE HIV.THEY GET SICK OF ME AND TELL ME THEY WANT NOTING TO DO WITH ME. AND FINALLY THEY SAY TO ME IT'S YOUR PROBLEM NOT MINE, BECAUSE THEY KNOW ALL READY THAT THEY ARE NEG.I'T WOULD BE A GOOD IDEA FOR YOU TO GO TO WWW.MEDHELP.COM AND WWW.AIDSMEDS.COM. ALOT OF PEOPLE POST ON THESE WEB SITES THAT ARE JUST LIKE ME AND YOU, WE SUFFER FROM HIV PHOBIA,. NOW LISTEN YOU DON'T HAVE HIV JUST THE OBSESSION OF HIV.NOW STOP THE OBSESSIVE TESTING, AND COME UP OUT OF WORRY WELL HELL AND ENJOY YOUR LIFE AND BE GRATEFUL THAT YOU DIDN'T GET HIV FROM UNPROTECTED SEX.PEACE.I UNDERSTAND.
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Cobal
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Master
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Reged: 07/23/06
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Posts: 136
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I'm in the same situation and just tested at 11 months with a negative result. Did both the RNA and DNA at 10 months and prior. Symptoms are still present, and to have read of those that have taken more than 6 months. I'm about convinced that those are indeed rare events, and that the testing done is enough to indicate that I'm indeed negative. But There are other infections out there that can cause the same symptoms. My advice is to continue checking with you GP until you find the underlining cause of your symptoms. But going by your testing history, its very unlikely that you are infected by HIV. Good luck and keep us informed on how it turns out for you.
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Thanks for the encouragement. I wish someone could identify the one conclusive test I could take at this point (almost 11 months), that would help me move on from this. I would gladly take it and be done.
I am really trying to be rational like my user name. On the one hand, I mean, in July, a 2 day stomach flu went through the house and another flu like illness (lasting 5-6 days) went through in December - everybody got them and got over them including me. So my body must be making antibodies to things, right? Yet on the other hand, why is the testing uncertainty and discrepancy in information and professional opinions in HIV so much higher than for other diseases/illnesses? With how long AIDS has been around, it should have the same confidence and certainty of a diabetic checking their blood sugar. Anyone else, feel free to comment.
Thanks and prayers to all.
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Cobal
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Master
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Reged: 07/23/06
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Posts: 136
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documented hiv infections have been around for 25 years. Many studies have been performed by varies groups over those years to produce a general outline about the virus and testing protocals. The tests are indeed valid for picking up antibodies. But because of indivual response and possibly virus strain there are rare cases where the virus could be missed. If you are really concerned, I would suggest that you check with your doctor about your concerns and follow up from there. You will note that this site recommends 3 months as being conclusive. I have read that bDNA testing is more likely to pick up wild strains of the virus. Good Luck.
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allen42
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Reged: 02/08/07
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Posts: 12
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Loc: Michigan
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I volunteer at a local AIDS Service Organization. I meet people like you often please dont feel like you're alone because you're most certainly not. HIV is a very scary thing and its good that you're afraid of it you should be every one should. I wasnt and ended up putting myself in a situation where I became positive in 03. How ever hearing you're testing history and your symptoms I have to say it is Extremely unlikely that you're posiative. It generaly takes from one to ten months for your body to build enogh antibodoes to show on the elisa test for HIV. Also the symptoms you are descirbing if caused by HIV would take much longer to show up. The virus usually doesnt work that fast in the body. It does sound like you have somthing going on in your body that needs to be looked at but its highly unlikely that it is HIV. Can I sugggest talking with your Dr. about your fears he may be able to give you beter insight. Another quick thought dont put your self in another situation where you have to be worried about it remember always play safe. Take Care and Im praying for your health and peace of mind
-------------------- Allen W Murray
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[quote]It generaly takes from one to ten months for your body to build enogh antibodoes to show on the elisa test for HIV. [/quote]
Actually it takes on average 25 days for antibodies to show up. Over 99% of people that are infected will test postive between 4-6 weeks. Those that don't are people that are undergoing Chemotherapy, organ transplant patients and others with serios medical conditions. In other words only those that are already extremely ill and under a doctor's care.
I hope the above is your personal position. Any ASO that would take that position and counsel that antibodies take that amount of time to develop is in direct conflict with respected and offical organizations. Spreading misinformation and half=truths such as this by an ASO could jepordize grants and funding. They are there to support the HIV population and provide testing and scientific prevention information. They are not supposed to be spreading misinformation about transmission and testing, which can increase the stigma that their very clients have to deal with.
And you say you are HIV+? Yet, you want people to fear you and your disease. You purposely spread false information to that end instead of trying to promote rational conversation about HIV?
Another thing:
"HIV is a very scary thing and its good that you're afraid of it you should be every one should. "
Of course no one else should have to live with HIV. But no one needs to be afraid of HIV if they understand the activties that cause risk and take procautions to reduce those risks. Too many people equate being afraid of the disease with being afraid of the person with the disease. To promote fear of the disease without quanitfying that it's only a few activities that must be protected is a disservice to you, to me and to everyone else living with HIV. I'm concerned that you are volunteering at an ASO. Did you go through the required courses that must be met before you can volunteer?
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