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coby
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It's getting worse:
#201920 - 07/29/06 12:33 PM
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Well for the past three days I feel liking I'm fighting thrush in my mouth. I have it coming from the back of my tongue and can wipe ot off and it comes back, my tongue is also hairy looking. I also feel like I'm fighting PID again which is another infection that's very hard to get unless you have HIV. My eyes are hard to get to focus and cloudy at times. I have a very sore rt breast that I'm not to worried about cause I have seen in the last year a few women that have been infected that have sore boobs that have swollen glands or something I think it's just part of the infection in the body. Lately it's been hard to even talk without having to clear my throut every second, people keep asking me if I'm ok. If I didn't have kids I'd just give up, why does this have to be happening to me? Why can't they find this? I never thought that I would have something for so long that the docs have been unable to find. For some reason a couple of fingers and an area on my palms are peeling just a little to. I had sex with hubby the other day and that's when I started feeling really bad in the belly, it swells and just feels a little sore. He's fighting something in his throut and both of are feet are very tender and sore. It's been 15 months of this shit and I'm running on thin ice, my mind is ready to give up.
I'm not looking for a pitty party just wanted to let you guys know what up with me. I was up all night looking at my hubby sleeping wondering how I could of done this to him. I don't think I can take looking at him for the rest of our lives knowing that I made him sick, it's really very different than not knowing you had something and passing it that way. He was in perfect health as I ws before this and now we are both not feeling well. The thrush is the sure sign for me, as I have not been on any meds so have no other reason to have it again. I guess I'll just keep going to the docs having then give me cd4 counts to see if they in time will set a pattern of falling, then maybe they will check me for a rare strain or maybe I will someday test pos on the antibody tests. I just don't know how much I even care anymore to be honest. I can't go outside to get some sun without breaking out all over, can't get my hair colored without it falling out from the coloring, can't sleep a good nights sleep without sweeting or waking up from shit all in my throut and feeling like a mack truck hit me. It's like what the hell can I do, nothing. I'm sick of living and I wish my kids were older I'd take myself out asap. I enjoy nothing anymore in my life cause I feel like shit and worry so much over my husband and what I have done to him, I see what I have done and it's the same thing I have done to mine, completely destroyed everything. I have thought so many times if I could deal with getting this while I was single and not having the guilt of giving it to someone else and I think I could but I can't deal with what has happened, I just can't.
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[quote]I'm not looking for a pitty party just wanted to let you guys know what up with me. [/quote]
Really don't care what's up with you. Your drama queen act is getting old. We aren't your personal therapist. Go see a real one. Or maybe you just rather wallow in your self-pity about cheating on your husband, than actually doing something constructive about it. I guess it's sometimes easier to hide behind hypocrondria, then deal with your actual problems.
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coby
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I guess the guilt is bringing on my thrush and all the other crap that I have! I don't care that you don't care, but some here have the same issues as me and that is who my post is for. I don't need anybody to tell me anything that they think would make me feel better cause to be honest it won't help anyway, just sharing with the people I talk to what I'm going thru and what my body is fighting, if you don't like it stay away from any of the posts that are made by me. It's really that simple
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dear pinkster,
I understand what you are going through right now. Please try to relax your mind. I can relate to your problem. I spent a lot of money for the tests, went to different specialists, but got no answer to my problem. I had been suffering from yeast infection (recurrent), tingling legs and feet, my tounge was white, had suffered from lbm, sore throat, dry cough.. and a lot more. I live in 3rd world country and we have no free medicine here, check up is very expensive. I spent a lot of money and didnt find answer to my problem. What i did was, i paused. I stopped looking at the symptoms. i tried to self medicate. I drink at least 8 glasses of water, i take vitamin C everyday, i take virgin coconut oil 3 times a day, i make sure i sleep 8 hours, exercise for 30 minutes, i tried to avoid thinking so much.. in a month i feel the difference. i have no more white coating in my tounge, had pap smear test and result was good. By the way, i had HIV test done last May and it was negative and another test in the panel doctor of the embassy and its negative thats why i believe i am negative. I just try to live a healthy lifestyle. too much thinking and not sleeping will cause many problems.. try to have rest. Try not to think much.. You will be fine. Love Jas
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pinkster I have been in the same situation. test neg. by all kinds of tests out to 9 months and the source at 6 months neg. symptoms still persisting although minor but were strong for first few months. if hiv was the cause I think I would have had a pos. result by now from one of the many different tests. I think you would have shown by now too. your cd4 of 1180 would indicate that your symptoms could not be hiv related because of such a healthy cd4. they say that related symptoms don't start to show untill the immune system is damaged to a 200 - 300 count. I have something going on but I just don't think it could be hiv anymore. I am still going to keep testing for a while but am looking for other possibilities as well. I will be meeting another immunologist soon. I will absolutely keep you updated. please do the same. take care.
gman9/23
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I self diagnosed myself wih thrush. My tongue looked just like how you described yours.
It wasn't thrush. Confirmed in the ER.
PID is common. Really.
I am so so sorry that you have to live with hatever sickness you have, as well as the guilt. It is hard, and I hope soon that you get the answers you need.
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Tony001
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Reged: 07/12/06
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Did the ID specialist at the OSU comeup with anything yet? What does he say?
-Tony.
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What part of 'YOU HAVE TESTED NEGATIVE FOR HIV AND DON'T HAVE HIV" don't you understand?
Quite frankly I find the fact you can't let go of this and insist on rehashing this nonsense quite insulting. I LIVE WITH HIV and after over a decade I'm thankful that I'm no where near as ill as you seem to THINK you are.
The very fact you insist on going on and on and on over TRIVAL STUFF after all your conclusive negative test results only belittles the VERY REAL HIV ISSUES those of us that actually live with this disease face day in and day out.
Your posts only show that you KNOW NOTHING ABOUT HIV and it's progression. Get a life. Someplace else.
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I also have fungus on neck and thrush going to Id doctor still have popping ears at times and lots of lymph nodes in breast confirmed
with mammagram. dry mouth that is killing me and some liver
discomfort. my stomach grumbles after every meal. eyes so red in the morning. feel disoriented when I wake up. I forget thing I do. I was
exposed to hiv and hepc. It is documented that you can get a super infection hiv hep c cmv ebv and you have so much going on inside your body that you don't produce antibodies until one takes the lead which can take longer to seroconvert though it is not common it stilll doesn't mean it can't happen.
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When have lots of infection you are fighting it is called viral interference and it takes longer to produce antibodies not trying to scare anybody because it is not commom but that is why you
need to test longer if you had a known exposure and had ars symptoms. After ars I didn't have any symptoms until 6 months after exposure. Then I got sores all over my lips and hard palate with popping ears and severe bone dry mouth, lymph nodes in breast, urinating at night time now, liver pain, bowel problems yeast in mouth and fungus on neck
I feel feverish every morning and sick and my teeth ache.
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coby
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I don't think that I could have caught hep c, there was no blood envolved maybe hep b. I do believe that the super infection you speak of could be true and it would make sonce that maybe this is what is happening to me. I love how the pos poster is so nasty and thinks that I could not have worse symptoms then someone who is pos. When you hear such nasty words from some here it just makes you hope that if you do end up showing pos you don't act like that. Anyway, is it possible to get hep c from just sex and no blood exchange? I do believe that my body is fighting so many infections, I too went and am going thru all you are. What is your ID doc saying and did you get logged in yet? I can pm you and we won't have to hear the nasty mean shit from some here, SOME FORGET WE HAVE A RIGHT TO BE HERE AS WELL!!!! Register so we can talk NOW...................
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coby
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He don't know what to say to be truthful. He's not god and even if he's a great doc it's still science. I love him and trust him but he did not come out and say there was no way it's HIV. I think that when they have a case like mine, they try to keep you calm knowing that for some reason you may produce antibodies late due to numerous infections, rare strains whatever the case may be so they just try to keep a close eye on you and not say much. If they say no way and let you go after seeing the swollen lymph nodes,crap in mouth and numerous other things, they are at a real risk for getting sued. Shit I don't know nothing anymore other than I'm in pure hell!
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coby
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Register or I'm going to beat ya! :)
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coby
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Thanks for the kind words but if you have white shit on your tongue that is an 8th of an inch thick that you can scrape of, it's not just a coated tongue, that is what I have. I do thank you again for the kind words just wanted to let you know it's not just white.
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coby
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Excuse me ANON! You maybe need to brush up on your HIV knowledge, you do need to know that yes you can surely have thrush this early and PID this early and all kinds of shit for that matter with a high cd4 count. Don't tell me what I know and don't know about shit just cause I don't have a freaking test telling me I'm positive! If it's not HIV then I'll tell you it's fucking worse, you are pissing me off and I don't need to hear your shit. I have been thru hell and back for that matter more then once, keep your crap to yourself. Consider yourself lucky you know what you have and where you stand cause I don't know shit about what going on with me. I'm not saying HIV is not serious but you have been told what you suffer from. Look at it this way, what if you were back 25 years ago getting sick as hell and being told " I Don't know" or "It's in your head" when you knew that was not the case, do you have a heart at all? I'm sorry but I don't have to take your crap, you have a s[ace to go to on this site it's called living with HIV, why do you have to come to this section a beat on people that are already hurting enough!!!!
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