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HIV Transmission and Education >> Am I Infected?

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rufenough
Fanatic

Reged: 04/22/06
Posts: 50
Even more dissapointed!
      #188976 - 05/02/06 04:18 AM

Well,

I get my 8 week results on Thursday...already had the clap treated, nearly 80% sure the syphiilis will come back pos (cos of the awful rash I have had).......and still sweating like hell over the HIV result....becuase of the symptoms and diseases I have had from this one exposure, Im pretty low at the moment and dont like my odds, even though I can find nothing anywhere about the amount of multiple STD infections that occur from single exposure.

On the subject of odds, and having spent days and weeks reading about HIV here and elsewhere. I have to say I am very disspointed in the apparent inconsistencies and contradictions within the Medical community about HIV.

These inconsistencies make it difficult for both sufferers and those anxious about possible infection.

I read the Cancer Institutes Mission Statement at http://www.retrovirus.info/mission.html the opening statement being.
QUOTE
"At present, approximately 1 million Americans and 40 million people worldwide are infected with HIV. The vast majority of these individuals are destined to die of AIDS unless truly effective therapy can be developed. For them, as well as many more who will become infected within the next few years, any future vaccine will come too late, and effective therapy must be developed to combat existing infection"
.................................

So who represents the vast majority, in the cancer insititutes eyes? ....so those infected now and in the future are destined to die the same way? This outlook flys in the face of all the comments made by the professionals on this website and eslewhere, who say that with CURRENT (let alone future meds) modern HAART regimes, and new meds coming on stream, HIV is now a chronic but not fatal disease. So who is telling me the truth? Please tell me.

Then of course for those like me.....who are looking for comfort in information about the risks of infection/co-infection. I can take figures from what we might consider ought to be reliable sources. Some say my risk is as low as 3333:1 from a single HIV exposure, others say its 2:1 !!!!!! For the same act. Quite a disparity dont you think?

Then the more logical outlooks seem to suggest risk of 5 or 6 to 1 or up to 50:1. Ive had to work out for myself that if thier are 40,000,000+ infected individuals and the odds of transmission are a 1000:1 each individual who got infected had a damn good sex life before they became +ve!!

I wish the idiots leading people into a false sense of security about risks would shut their mouths, and stop encouraging risk. I, and I know others hold you to some degree accountable for our situations.

I have read many accounts similar to my own, young (once)somewhat redblooded, and somewhat educated about HIV (although not educated accurately by the proliferation of crap on the internet, published by supposedly reputable sources) have wieghed up the risks based on their readings, and taken the plunge into mother natures realm without the aid of a raincoat....just once, and hey presto life ruined......1000:1/ 50:1 crap!!!!!! The HIV virus is like any other, it must be effectively transmissable to survive. Who are these clinicians doing these studies???? I hope they dont get paid too well. How do they justify publishing these wildly differing claims?

The act of sex is as basic to mankind as eating, and yet we are made (by some) to feel like social outcasts when we catch a disease as a result of that act. This too is something that I find difficult to except, even in the STD clinics you sense a kind of "Oh not a another one" attitude.....what are they all celibate?

Does anyone actually know what they are talking about?

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Anonymous
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Re: Even more dissapointed! new
      #188977 - 05/02/06 05:26 AM

Rufenough

I hope all goes well with you. I agree that this statistical risk thing does not make sense to me as well. either you get it or you dont, so the risk is 50%. i am sure statistics is not my cup of tea as well.

however, it also seems to be true that hiv is a much harder virus to catch, and clap or syphilis much more easier than it. so i will keep my fingers crossed and wish the best for you. if your 8 week test is neg, you are almost there....

take care, and hope everything goes well. do keep us posted amidst your celebrations after the neg test. if things do not go well, we are all here, and will be around if you need us.



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Anonymous
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Re: Even more dissapointed! new
      #188981 - 05/02/06 07:01 AM

HIV is now a chronic but not fatal disease.

Make no mistake HIV is a fatal illness. Worldwide 1,000s of people die from HIV/AIDS everyday. It's only chronic for those that can afford the treatment (Annual cost between $12,000 - $35,000) and don't end up with treatment failure or liver disease from the toxcity of the medications. Advances in science has given us weapons against the progression of HIV, but it is still very much a fatal illness.

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Anonymous
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Re: Even more dissapointed! new
      #189026 - 05/02/06 11:38 AM

Anoymous, whoever you are.

Thanks for your support. My major concern is that I am convinced I have Syphillis (I feel this is 99%er now becuase the doc gave me some antibiotics for the interim period between taking blood and waiting results. To keep it at bay but not cure. He did this becuase my rash was itching and burning like crazy, and I had neuropathy in my fingertips and toes and palms of my hands along with a twitching in left hand side of my face and eye! This after less than 8 weeks since infection. This what has really scared me becuase I have read (once again accuracy is anybodies guess) The neuropathy in early stages of Syphillis is usually when patient is co-infected with HIV at same time. Found once reference to this...and one reference to Neuropathy being common in all stages of syphillis (regardless of HIV), and another reference say it never happens in early stages of syphillis......mmm very helpful...and yet another syaing its common with ARS.....Thanks guys that leaves me chasing my tale sufficiently to die of anxiety before I get the diagnosis !

Thursday is going to be a difficult day.

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189035 - 05/02/06 12:27 PM

look buddy, these studies that quote risk are based on actual serodiscordant couples, where one had HIV and one did not, who engaged in repeated acts of unprotected sex. the dizzying amount of unprotected sexual acts going on each day in our country and around the world account for the widespread transmission, not the high virulence of the HIV virus. its like playing russian roulette. some people get the bullet on the first pull of the trigger, most don't. none of these studies are advocating unprotected sex, they are just relaying the exact numbers they got from their studies.

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189060 - 05/02/06 03:03 PM

Dude... Regardless of what STD's U got and symptoms U have.... U have to wait till Thursday to be sure....... I would be willing to bet U will end up being one of the biggest advocates of the "symptoms not = diagnosis" line by the time U get your results...... U will be fine... Be optimistic!!!

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rufenough
Fanatic

Reged: 04/22/06
Posts: 50
Re: Even more dissapointed! new
      #189152 - 05/03/06 02:45 AM

[quote]look buddy, these studies that quote risk are based on actual serodiscordant couples, where one had HIV and one did not, who engaged in repeated acts of unprotected sex. the dizzying amount of unprotected sexual acts going on each day in our country and around the world account for the widespread transmission, not the high virulence of the HIV virus. its like playing russian roulette. some people get the bullet on the first pull of the trigger, most don't. none of these studies are advocating unprotected sex, they are just relaying the exact numbers they got from their studies. [/quote]

Let me ask you a question buddy! Was the researcher sitting there whilst these couples "Got it on".

Since I contracted (SO FAR) two diseases in one risk, one being perhaps far less common than HIV (although apparently much more transmissable...not sure I believe this since it enters the body via the same mechanism, (mucosal) its only advantage is it appears to survive a little longer out of the body).

I have read and read and read, and exchanged emails with quite a few people who have contracted HIV. ALL of them contracted from either a single mistake or a very limited number of possible exposures. Not one has come forward to me and said "I had to shag my partner a 1000 times before I got infected" So tell me how does that correlate with these "Studies"? Where are these people that record their sex life for clinicians?

I know these clinicians are trying to help, and that the results of their efforts are not designed to encourage risky behaviour. But the effects of their messages on peoples education needs to be considered as part of the problem, not part of the cure. Once again! I have spoken to a number of individuals, including professionals and those taking their advice, that feel that the studies are sending out all the wrong messages, they certainly did to me, and a number of people I have spoken too.
It seems that the ignorance about the disease itself is compounded by the ignorance of those studying its spread.

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189176 - 05/03/06 08:22 AM

Since when have you been a scientist or a doctor? You dickhead! Yes you are right that HIV enters the body in the same way as your other two STD's. Yes you are right that the ones you got are more infectious. You are also right that those who conducted these study's never sat there and watched the couples 'Get it on'. But one FACT still remains. HIV needs everthing to line up in formation for infection to occur, unlike the STD's you got. There is no point going into to detail about the biology of this because you are not a scientist or a doctor. The details would make your head spin.
I have personally seen people come into the clinic having had unprotected sex with scores of prositutes from abroad, have drip coming from their penis and sores on their balls (multiple STD's), but test negative for HIV. This is not uncommon. You know their usual response? "Fix me up as quick as you can so I can get back out there!" Mind boggling actually.

Yes you have placed yourself at risk and the appropriate testing is being conducted. Until someone says to you, "Yeah you got it", don't assume. You may, you may not. Luck plays a great part in it. Wait for the test result and if you come out of it negative, LEARN FFS!

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189241 - 05/03/06 01:26 PM

So...am I to assume from your defensive response that you are a scientist or a doctor? And if so is this the way a scientist or doctor usually responds? I mean calling someone a dickhead does not sound like the response of a very academic individual, so if we are all like you, know wonder the information and education about HIV is so misleading.

I've come this forum looking for help and support, AND to vent some anger at the situation I find myself in, something I have been led to believe is what the forums are for. They arent really for calling people names.

Wake up and smell the coffee, being frustrated by your own limitations to understand another is not an excuse for insults, im looking for valid information to my situation, and advice, observations and suggestions.

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189242 - 05/03/06 01:27 PM

So...am I to assume from your defensive response that you are a scientist or a doctor? And if so is this the way a scientist or doctor usually responds? I mean calling someone a dickhead does not sound like the response of a very academic individual, so if we are all like you, know wonder the information and education about HIV is so misleading.

I've come this forum looking for help and support, AND to vent some anger at the situation I find myself in, something I have been led to believe is what the forums are for. They arent really for calling people names.

Wake up and smell the coffee, being frustrated by your own limitations to understand another is not an excuse for insults, im looking for valid information to my situation, and advice, observations and suggestions.

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rufenough
Fanatic

Reged: 04/22/06
Posts: 50
Re: Even more dissapointed! new
      #189253 - 05/03/06 01:46 PM

Thanks anonymous.

Dont know if your the same anonymous that called me a dickhead....but thanks all the same for helping me face the music tomorrow....if you've been there, you know it's not easy, when you know you've been a fool.

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Anonymous
Unregistered

Re: Even more dissapointed! new
      #189319 - 05/03/06 05:32 PM

Indeed my friend... U will login tomorrow after U've celebrated for a while and say "guess what?" I do not have hiv!!!

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