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funguy
New User

Reged: 08/11/05
Posts: 4
Loc: Texas
No Energy
      #158495 - 08/11/05 11:21 AM

This is actually about dealing with my partner who is HIV+ as I am. He is fortunate in that after testing poz 4 yrs ago he is still not on meds. His last labs CD4 - 400+, VL 30,000...I think. The problem I am looking for some help with is he is tired all the time. He works 3 to 4 twelve hours shifts a week with several days off between shifts usually. When he is off all he wants to do is lay around and sleep. He says he has no energy and even worse no sex drive. He tells the our Dr. says this is normal but I don't think so. It is very frustrating....can anyone relate.....can anyone offer me some advice?????

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Anonymous
Unregistered

Re: No Energy new
      #158539 - 08/12/05 01:40 AM

There are so many factors that go into HIV and lack of energy, but many times diet and exercise (resistance) are factors to look at.

Whether or not you are on meds, your body is producing toxins, either as a side effect of the meds or the virus. These need to be pushed from the system, and another factor to watch is blood counts, (general). HIV and or meds can alter the red blood count, platelet count, and glucose levels. All factor into the energy ability of the body.

There are also many depletions that go on with HIV and the medications of vitimans and minerals. I notice these very closely. Some of the fatigue can be a side effect of depletion of these essential items. Some of them I replace at mega-dose levels.

About me: Almost 46, HIV/AIDS 20+ years, on meds 6. Fatigue at times is an issue, but for me the vitamin and mineral has been beneficial and could not function daily without lifting (in moderation). Enjoy the side benefits of it, as I still look good for my age, and is in no small way a energizing factor.

Two things I noticed right off after testing positive in '85 - the survivors thought they could and they exercised. I thank them every day for my survival and quality of life.

Hugs to both of you.

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Anonymous
Unregistered

Re: No Energy new
      #158797 - 08/18/05 01:58 AM

He should also have his testosterone checked as it is fairly common for someone HIV+ to have lowered testosterone which affects energy level and sex drive. I have been on testosterone replacement therapy for 5+ years now.

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Tokyo gaigin
Unregistered

Re: No Energy new
      #158810 - 08/18/05 10:59 AM

fully agree with the previous statement. Exercises help boost the immune system and make us feel better, much much better... Heaps of vits and minerals are a must too but they might be monitored properly with our caring angels (doctors). Last but not least, thank you ppl at The Body for this wonderful site. It really helps to know we're not alone!!!

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Anonymous
Unregistered

Re: No Energy new
      #158811 - 08/18/05 11:26 AM

I can relate to the tiredness factor beacuse after having been on meds for 5 years now my body is used to them but since I work only ten or so hours a week any spare time is usualy given to sitting in my rocker or in bed prone so that my copd & or acid reflux won't kick in .
Other wise I stay in said rocker and at times even sleep there all night beacuse of the tiredness factor of not wabting to even go to the bedroom to sleep .

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Anonymous
Unregistered

Re: No Energy new
      #158813 - 08/18/05 11:33 AM

Working 12 hour shifts would be exhausting to anyone - not just those who are HIV+. I work 40+ hours a week and am in graduate school. I know I am exhausted.

That said, I hope your partner can get some help. Perhapse a new job? Life is not living if you are exhausted from long hours. There is too much living to do, especially when we are positive.

Best wishes and good health to you both!


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Anonymous
Unregistered

Re: No Energy new
      #158838 - 08/18/05 06:46 PM

take coq10 doses of at least 100 mil twice a day-this should help his energy increase.


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_tylox99_
Member

Reged: 07/14/05
Posts: 38
Loc: MA
Re: No Energy new
      #158841 - 08/18/05 07:11 PM

[quote]take coq10 doses of at least 100 mil twice a day-this should help his energy increase.
[/quote]

Sorry to go off on a tangent here, but this is important and potentially dangerous

Just to make it easier, let me paraphrase what is below

CoEnzyme Q10 is an antioxidant used for a few disorders. Some patients with certain conditions (Parkinson's, some heart diseases, and some cancers) have shown a lower level of CoQ10 in the blood, and it has also been shown to decrease with time.

It may only work if a patient has lowered CoQ10 levels (which has not been shown in HIV) but only possibly for the conditios listed, and has never even been indicated (never mind FDA approved or not) for fatigue.


And here is a very important direct quote

"No firm conclusion can be made in regard to the efficacy of CoQ10 in these conditions, although the controlled data suggest that CoQ10 does not offer benefit to patients with heart failure (see below). "

It also can interact with diabetic medications, heart medications, blood thinners, and chloesterol meds.

Just because it is natural does not mean it is safe or effective. It is a drug you put in your body, the only difference is with natural products they don't have to prove they work! (And they want to make money as well, they are not all altruistic as their image sggests!)


INDICATIONS:

• heart failure†
• mitochondrial cytopathies†
• nutritional supplementation†
• Parkinson's disease†



--------------------------------------------------------------------------------

COMMENTS:

NOTE: In the US, nutraceuticals are marketed under the Dietary Supplement and Health Education Act of 1994 (DSHEA). Consequently, scientific data supporting claimed benefit(s) are not always available for nutraceuticals as they are for traditional pharmaceuticals since nutraceuticals are not regulated as drugs. Consumers should also note that rigid quality control standards are not required for nutraceuticals and substantial variability can occur in both the potency and the purity of these products. Monographs on nutraceuticals are included in CP when reliable clinical data are available. The information presented below is condensed from the best clinical data we could find.
Description: Coenzyme Q10 (CoQ10), also known as ubiquinone, is an endogenously synthesized provitamin that is involved in a variety of cellular processes. It is a fat-soluble antioxidant and a member of the quinone family with a structural similarity to vitamin K. Coenzyme Q10 is also known by the name ubidecarenone. Coenzyme Q10 was first isolated from bovine hearts at the University of Wisconsin in 1957; it is found naturally in small amounts in foods, particularly meat and seafood. Endogenous levels of CoQ10 decline with age. In addition, endogenous deficiencies of CoQ10 have been noted in patients with heart failure, cardiomyopathies, cancer, and some neurological diseases (e.g., Parkinson's disease). Despite initial studies showing little proof of efficacy (Matthews PM et al 1993), in December 1999 the FDA granted orphan drug status for the treatment of mitochondrial cytopathies to one manufacturer of CoQ10, the GelTec/Tishcon Corporation, for the study of its proprietary supplement UbiQGel®. Mitochondrial cytopathies are a group of inherited defects of the mitochondria. MELAS syndrome, Kearns-Sayre syndrome, and MERRF syndrome are some of the more common mitochondrial diseases.
Actions: Coenzyme Q10 is a carrier for electron-transfer within the inner mitochondrial membrane. It plays a vital role in ATP production (oxidative phosphorylation). Antioxidant properties, such as free radical scavenging, have also been noted. CoQ10 may possess mild inotropic activity. The highest endogenous concentrations of this provitamin are found in the heart and other organs.
Uses/Documentation: The use of coenzyme Q10 has been postulated to be of benefit in a variety of disorders; it is possible that a pre-existing state of CoQ10 deficiency may be necessary to observe any clinical benefit from supplementation. CoQ10 has been studied as an athletic performance enhancer, adjunctive treatment for cardiovascular diseases, acute myocardial infarction, adjuvant treatment for metastatic breast cancer, prophylaxis of doxorubicin-induced cardiomyopathy, familial cerebellar ataxia, periodontal disease, muscular dystrophy, Parkinson's disease, and mitochondrial disorders. Most of these uses are based on speculative data or limited, uncontrolled clinical trials. No firm conclusion can be made in regard to the efficacy of CoQ10 in these conditions, although the controlled data suggest that CoQ10 does not offer benefit to patients with heart failure (see below). The use of CoQ10 for mitochondrial disorders will need controlled trials to support clinical efficacy.
Contraindications/Precautions: Safety and efficacy of CoQ10 in pregnant or lactating females has not been established; CoQ10 should be avoided in these patient populations at this time. Use with caution in very young children.
Drug Interactions: The clinical significance of the following is unclear at this time.
Antidiabetic agents: Some reports have claimed a decrease in insulin requirements in patients with diabetes mellitus; other studies report no clinically significant effects (Henriksen JE et al). Monitor blood glucose.
•beta-blockers: Have been reported to decrease endogenous CoQ10 serum concentrations, the clinical significance of these effects is unknown.
•HMG-CoA reductase inhibitors: Have been reported to decrease endogenous CoQ10 serum concentrations, the clinical significance of these effects is unknown.
•Warfarin: Several case reports have noted a decreased response to warfarin when CoQ10 is added to stable regimens. This is possibly due to the structural similarity of CoQ10 to vitamin K (Spigset O. 1994). Monitor INR.
Adverse Reactions: Coenzyme Q10 is generally well-tolerated; nausea has been noted as a reason for discontinuation of supplementation. Other gastric related disturbances may occur (e.g., diarrhea, dyspepsia, and loss of appetite). Insomnia and asymptomatic hepatic enzyme elevations have also been reported with higher dosages.





--------------------
Words are, of course, the most potent drug used by mankind.

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Anonymous
Unregistered

Re: No Energy new
      #158922 - 08/20/05 11:00 AM

I am 40 and have been positive for over 5 years and am still relatively healthy (vl 30,000; CD4 900 - approx). I know without any doubt this is partly (maybe even largely) due to the fact that I eat a very healthy diet (organic, vegetarian) and excercise at least four times weekly. I work full-time and have a part-time job (about 50+ hours weekly). I still get tired (who wouldn't?) but I know that excercising makes me feel less tired. Jogging is definitely good (not only does it keep you fit but also releases feel-good chemicals)! Sorry for going on, but basically all I'm saying is that exercise and diet can go a long way towards solving energy problems. Start slowly (eg, walking 20mins daily) and build up. Also, eat well (basically, loads of fruit/veg). I know it sounds difficult to find the time for all of this but it's amazing how you can find the time once you start investing in fitness/healthy diet. An even better outcome can be the energy to party whenever the opportunity arises! Good luck and take care.

P.S. A recent study concluded the following foods are integral to a healthy and long life: garlic, almonds, red wine, chocolate (not joking), fish, olive oil and lots of fruit/veg.

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funguy
New User

Reged: 08/11/05
Posts: 4
Loc: Texas
Re: No Energy new
      #158995 - 08/22/05 06:11 PM

Thanks for everyone's suggestions.
First, I should have said my partner is not on any meds for HIV. He is a very slow progressor but that is another story and problem.
Second, he tells me that the doctor says everything is "normal" with his testostrone levels, etc. Don't know if this is true or not just have to take his word for it.
Third, I do think it could very well be depression not only about our/his HIV status but also about getting older. Neither of these are things either of us can do anything about. He is on an anti depressant and I have tried to get him to see about upping the dosage or getting a different one but he is very stubborn so what is one to do.
Fourth, we both could use the exercise but because of work schedules it is difficult and neither of us is movitvated enough to do it on our own individually.
So, there is the rest of the story as they say.
Thanks again for all your help......

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Guy Paul
Unregistered

Re: No Energy new
      #160238 - 09/19/05 12:34 PM

Here's a few things I suggest to deal with the low energy level:
Make sure you're getting enough water.
Eat frequently, but make the portions small.
Keep moving -- oddly enough, doing begets doing. Once you stop, you're dead in the water.
Make lists of things you want to accomplish each day (it works for me to do it the night before) and cross them out on the list after you've done them.
Use a tape recorder to ramble into -- sorta like running a defrag on your computer -- to get all the garbage out of your head that may be slowing you down.
Watch the words you use in conversation, and especially describing your own condition. Phrases like "I can't" or "I should" are more powerful than you may realize and can really do a number on your psyche.
Get outside as often as you can. Staying indoors makes your world too small and the walls start closing in.
Best to you -- hope some of these ideas make life happier for you.

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Drake
Unregistered

Re: No Energy new
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Re: No Energy new
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