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Anonymous
Unregistered

Diagnosis
      #133355 - 01/21/05 06:33 PM

22 and diagnosed two weeks ago. Don't even have health insurance. How do you go on?

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shadow1
Legend

Reged: 12/06/00
Posts: 1209
Re: Diagnosis new
      #133361 - 01/21/05 07:48 PM

I went for many years with no insurance, there are many agencies that will and can help. Look at http://www.thebody.com/learning.html
It can help a lot.


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ryenfag
Newbie

Reged: 01/22/05
Posts: 1
Re: Diagnosis new
      #133367 - 01/22/05 09:13 AM

Rob, 26 livn in Tampa. I recently tested positive myself on the 13th of this month. I am doing doing as much research as possible online. Here is a site I found that may help. I hope that you qualify.

http://needymeds.com/



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Anonymous
Unregistered

Re: Diagnosis new
      #133368 - 01/22/05 10:08 AM

I understand what you are going through. I tested positive when I was 26. I was alone, having come out of a 4 year relationship. I did have a job with insurance so I was able to get my meds but was shocked at what they cost. I thought my life was over. Who would want me now that I have HIV? After a few bad dating experiences, I did meet someone who is also HIV+. We have been together for 8 years now.

The best thing to do is try to have a positive attitude (no pun intended). Research the disease and talk to your doctor. If you are lucky, you will have a great HIV doctor that knows his business and can explain your options. There are programs that help people get their meds and organizations that offer support. Just take it one day at a time. I get through it by not thinking about it at all except when I have to see my doctor or get my blood tests. I still am scared, hurt and angry but I am here. I plan to keep on going.

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youngpos@aol.com
Unregistered

Re: Diagnosis new
      #133390 - 01/23/05 10:58 AM

I was 23 when I tested. I did have health insurance but.....I know that most major universitys have clinical trials where they provide your treatment and medicine for free. I did that back then and I continue to use them now even though I have insurance. Aids clinical trials are all over the country and I know that Florida has a couple.

Hope this helps and hang in there. Life goes on - take care of yourself. I'm 31 now and loving my life.

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Anonymous
Unregistered

Re: Diagnosis new
      #133394 - 01/23/05 01:11 PM

thanks for all your encouraging words. when you are going through something like this, it is helpful to know that others survived these tough beginning weeks. I'm hopeful that this time will be the hardest and that one day I'll be less filled with panic. I got some xanax and it has helped with my panic attacks.

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Anonymous
Unregistered

Re: Diagnosis new
      #133401 - 01/23/05 02:53 PM

I am fortunate enough to live in Canada where healthcare is available to me without costing me my live savings.
I was diagnosed last year when I was 27, and I have used the medical system a lot so far. I know the coming years are going to also be a burden on our system.
I guess I can't complain, because I have specialists and drugs available to me when I need them. So, times like this I'm glad to be Canadian :)

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AntonioPR
Newbie

Reged: 12/30/04
Posts: 4
Loc: Puerto Rico
Re: Diagnosis new
      #133406 - 01/23/05 08:07 PM

hi, I m 4 years with the condition, living in Puerto Rico, I was in clinical trials they cover doctors visits, all test and drugs. Puerto Rico goverment pay for the treatment of the HIV+ people. In every state they have goverment coverege and non-forprofit organization that help people with HIV. Talk to your doctor, nurse and case worker. Do not use ilicit drugs or alcohol, sleep well and visit your nutricionist. Do some exercises and enjoy your life.

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Anonymous
Unregistered

Re: Diagnosis new
      #133509 - 01/25/05 03:19 PM

Hi there,
Sorry to hear about your diagnosis. You might want to look into the Ryan White CARE Act, I have seen many patients that get meds and more through this program. Plus, you might not even need to be on meds yet if you were just diagnosed. If worst comes to worst, you could always apply for Medicaid in your state. I think they are likely to accept you if you have a chronic condition and no insurance, even if your income isn't so terrible. Good luck to you!

P.S. Do a search for Johns Hopkins clinical trials. They have some great programs and are always doing a billion studies.

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dakotalagrange
Regular

Reged: 07/26/04
Posts: 31
Re: Diagnosis new
      #133631 - 01/27/05 03:02 PM

I know that you are struggling right now. There are so many questions and emotions. I have been positive for two years. I was 29, working part-time and had no health insurance. I was receiving Ryan White funding. In the past two years, I have maintained an Army Reserve career, obtained a full-time job with benefits (no pre-existing condition clause), finished a Bachelor's and Master's degree, and will be pursuing a Ph.D to research HIV related issues. Trust me, it is difficult but you can go on. You will find it easier if you have a great support network and the ambition to keep living. Eat well and exercise to improve your CD4 and keep you VL low. Everyone here is there for you and will help you in the process. Best wishes my friend!

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Anonymous
Unregistered

Re: Diagnosis new
      #133788 - 01/29/05 05:40 PM

Sorry to hear that you are POZ. Look to keep yourself active and have a good outlook on life. Don't let any issues upset you, and have a good outlook on everything. I know it is not easy to see it from this point of view, however, it is the only point. Look into what grovernment benefits you are entire to and apply for it all. Be well.

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