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Neuropathy - Yet, again!
Dec 29, 1997

I went seropositive 10 years ago & was dx'd with AIDS 5 years ago. Neuropathy (feet/legs) has been a problem since early on. I'm sure that a lot has to do with meds (AZT, et al), but a neuro workup a few years ago showed some actual nerve damage. Recently, the pain in my feet has been intermittantly unbearable & so the doc prescribed a drug called Neurontin. From what I have read, it is an anti-seizure med which really freeks me out (my sister had epilepsy very badly) and I am reluctant to take the first pill. As with all new meds, I don't know what to expect &, frankly, there's a psychological barrier now erected.

What's the skinny? Is this stuff "safe"? Any professional anecdotal evidence/stories that I should know about? Thank you for your time!

Response from Dr. Gallant

Yes, Neurontin is safe, and although it hasn't been used as long as drugs like nortriptyline, it appears to be effective in treating neuropathy.

By the way, AZT doesn't cause neuropathy, but "et al" does -- primarily ddC, ddI, and d4T. Also, the fact that you had "actual nerve damage" doesn't mean the neuropathy wasn't caused by the drugs-- you'd see that with both HIV-related and drug-related neuropathy.


thanks for your input

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