|intermittent loss of hearing with left right eye movement
Jun 29, 2000
viral load 25,000 t-cells 500, lowest 300, never on any long term antivirals..currently on none. 4 vicodin a day for pain in legs and arms. not only can i not get an answer for the pain in my limbs...but recently i have noticed mostly in am that when i move my eyes left to right noise changes..ex..water running..sounds as if someone disrupts the flow for an instant, back to normal, then disrupted again. this last for as long as i move my eyes back and forth, never up and down. Also, the pain in my limbs can be described as an "indian sunburn" this is 100% on waking up, and then decreases after a period of time, even if i lay down for a 30 minute nap it returns to 100%. one doctor diagnosed me with vocular myelopathy, i have been tested for carpal tunnel, no nerve damage. Please if you have any suggestions for me to give my doctor I will greatly appreciate knowing what is happening. Thanks.
| Response from Dr. Boyle
The symptoms you describe are unusual, especially for someone with high Tcells and not on any antiretrovirals.
To be honest, I can't think of a reason why the eye movement you describe should interfere with your hearing and the symptoms you are describing are not typical of a vacuolar myelopathy, but may be, in some form, a peripheral neuropathy. I could recommend an extensive neurologic work-up, which I'm sure your doctor has already pursued, but I think the best thing for you to do is seek out an experienced neurologist. Brian Boyle, M.D., J.D.
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