Jan 18, 2010
I have been positive since 1985 I had Toxo in 97 and started taking meds.. due to side effects I quit meds for three years Im now back on 5 mo. ts had dropped to 57 vl sky high.... I haven't seen my most recent labs but I know Im feeling better the constant diarrhea has stopped and I much clearer mentally. I am now dealing with my health issues now that I feel Im not going to die soon... and want to get correct diagnosis so I can feel better. I have Peripheral neuropathy diagnosed 93. in 97 I had toxoplassmosis. I started taking hiv meds after the toxo So the neuropathy pre dates the hiv meds. I started having gastro symptoms after the toxo I ate only small amounts Vomited every day every morning. and kept little food down I gained 100 lbs. this continued for 10 years I could not explain why I was over weight and still not eating much and vomiting .. In 2007 I started losing weight over 100 ldb. was hospitalized many times dehydrated because of acute vomiting, not having any bowel movements. I was diagnosed with gastropereses GP. I asked my GP doc if the GP could be caused by the HIV or side effects from medication He said No. I asked why I had it he said..." I guess your just lucky" wow. any way I now have more symptoms. Dizzy spells my heart rate is off . And I am unable to orgasm ( my doc now says it is stress) I don't think so its been over a year. I have read online about autonomic neuropathy and think that ay be what is going on. Are there any treatments for autonomic neuropathy I can not take the meds in the class of neuronton I have sever side effects. I don't want to go threw a long process of new drs appointments to just find I do have it and can do nothing. any suggestions or info on autonomic neuropathy? Thank you Blessings for the New Year
| Response from Dr. Henry
Autonomic neuropathy can occur due to HIV infection (usually in pxs with history of very low CD4 counts) and is often difficult to manage. I have not had much like with drugs like Neurontin for autonomic neuropathy but sometimes a focused approached (ie Reglan for gastroparesis) may help. In some cases a gastric feeding tube (place in jejunum) has been helfpul of provide nutrition and meds bypassing stomach. An assessment by an HIV savy neurologist and/or gastroenterologist can be helpful to sort out contributing causes and possible useful interventions. KH
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