|What can I do to rid Myopathy?
Sep 24, 2006
I was diagnosed HIV+ in 2005. I was in the hospital for 55 days in a row during that year. After I was released from the hospital. My doctor said I had come down with myopathy. I could no longer walk . I had to start using a wheelchair. I stopped using the whelchair almost a month ago.I was not able to take Physical therapy because I was not getting any Medicaid od Medicare. The Medicare starts in Nov. 2007.Even though now I am out the whelchair, I am now using a walker. I was wanting to know how long does this last? Is it forever? What can I do to start making me walk normal again? I am starting to get very depressed. Because it limits me on things to do.Right now I am healthy. I have a 525 T-cell count and undetectable viral load.Can you give me any tips on what I can do?
| Response from Dr. Henry
It is unclear from your note whether you had a myelopathy/neuropathy or a mypopathy. Outcomes are quite variable so I cannot be much help. Physical therapy is often crucial to improve the functional outcome. Some forms of nerve or muscle damage can persist for long periods of time. I would continue to advocate along with your HIV specialist/neurologist for more immediate access to physical therapy. KH
Get Email Notifications When This Forum Updates or Subscribe With RSS
This forum is designed for educational purposes only, and experts are not rendering medical, mental health, legal or other professional advice or services. If you have or suspect you may have a medical, mental health, legal or other problem that requires advice, consult your own caregiver, attorney or other qualified professional.
Experts appearing on this page are independent and are solely responsible for editing and fact-checking their material. Neither TheBody.com nor any advertiser is the publisher or speaker of posted visitors' questions or the experts' material.