|Neuropathy or What....
May 2, 2005
Poz since 98. Started at t-cells just above 200 and vl at 200K+. Originally on Trizivir and Sustiva, went undetectable immediately, t cells as high as 800+, then switched to AZT, ziagen and Sustiva. Multiple side effects, so also on BP meds, lipitor, ativan and elavil for slight neuropathy. Have had a couple "blips" but nothing above 1000.
Problem is leg and foot pain, both sides. Comes and goes, but steadily worse. MRI a couple weeks ago, but nothing there. Doc wants me to see a neurologist. Will discuss with him but just looking for some input as he's out of town for a couple weeks.
Any idea of the up side and down side of this?
| Response from Dr. Henry
Your HIV situation and current drugs would generally but viewed as low risk situation for peripheral neuropathy. In some cases I have had patients who have developed neuropathy like your case and I have switched off NRTI drugs altogether (in case the NRTIs may be contributing in some unmeasurable way ie some genetic pre-disposition)usually a trial of dual boosted PIs for 3-6 months to see if there is any improvement. Whether anti-oxidants or other alternative therapies can help is still unclear (i.e. L-carnitine, B vitamins--for ideas see www.daair.org or Jon Kaiser's book Healing HIV) but some patients report benefit. Seeing a neurologist is a good idea. KH
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