TIME TO ACT IS NOW!!! PLEASE POST!!! :-)
Oct 23, 2003
My Dear Dr. Conway,
I laud you for all your excellent efforts is trying to improve efforts to fight against this horrible disease.
Please feel free to write any input at the bottom of this call to action. Thank you from all of us who write to you at here at this site.
I am writing simply to encourage the infected patients here who read at the site to take action as you state in numerous replies.
It is true that we have gone a long way in the fight against the AIDS epidemic, but we now come to point in time that needs dire attention.
We now find ourselves with patients dying due to the complaceny of the infected public. Many of us, rather hide or attempt to hide our status for as long as possible rather than to take charge and lead the action!
This my dear friends is all troublesome and ineffective in solving our problems regarding HIV.
We need to write our congressmen, senators, and join our local AIDS act up and organization groups.
They need new life, need reinforcing support, new troops, and new strength.
Our fight, for new less toxic medications that prevent our loved brothers and sisters from dying due to NOW INCREASING RESISTANCE, HEPATOXICITY, INCREASED LIPIDS, PANCREATIC FAILURE, OR LACTIC ACIDOSIS.
I ask that we promote efforts to introduce new medications that prevent the formation of lipoatrophy and lipodystrophy. Many of us have to resort to new-fill or bio-alcamid and other methods. I haven't even began treatment and I have facial wasting in the temple region. You could be next, who knows?
The bottom line: we need to show the public that we have a significant interest in making a difference. It is now a necessity to get products researched for we can one day take a drug that prevents facial wasting rather than getting possibly dangerous fills.
And to give back to our brothers and sisters the equal access to healthcare and medications that they deserve that certain states in union have impeded. The fight may have started in the early 80's but my dear comrades the battle has just begun.
We are stressing a peaceful yet effective movement that will bring advances to the hiv field. I for one, HIV-infected, still wish to be a doctor. Others wish to be teachers, others policeman, some sports players, others actors.
Join me, fellow comrades, encourage others whether infected or not. This disease affects all and we must take charge. If we don't take action now, we risk losing the dreams of those who gone before us as the spectacular Arthur Ashe, Fred Mercury of Queen, the great Liberace, or even the still living and battling Earvin "Magic" Johnson.
These figures my dear comrades are all heroes! They live/d with the toils of this disease but they never refused to fight.
We must take action. Write your congressmen, support your clinical trials, and encourage GlaxoSmithKline, Gilead Sciences, and Bristol-Myers. The time is now!!!!
I am going to sign up for a clinical trial with the National Institute of Allergy and Infectious Disease, http://www.governmentguide.com/ams/clickThruRedirect.adp?55076483,16920155,http://www.cdc.gov/nc
Will you be brave and join me! You all make me proud!
Remember brothers and sisters, complacency is no longer sufficient!
Dr. Conway, I salute you for all your efforts! Please keep doing all the work you do. All your efforts have not gone unnoticed!(please input your comments below). Thank you again!
Maxwell Anders Hartford Hiv Infected two years New Jersey
Response from Dr. Conway
Thank you for your kind words and your call to action.
I would say that knowledge is power. If you are HIV-positive, the more you know about the treatments that you might require (efficacy and side effects), the more you can make an informed decision about your treatment. If you are HIV-negative, the more you know about the possible side effects of the treatments you may have to take if you become infected, the more you may think twice about putting yourself at risk of becoming infected.
As for encouraging research into better and safer treatments, this is already being done. But constructive comments from the outside to make SURE it keeps getting done are also important.
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