|HELP MY FEET ARE ASLEEP
Nov 13, 2000
I WAS DX A YEAR AND A HALF AGO I WAS IMMEDIATELY PUT ON MEDICATIONS ZERIT, VIDEX, & VIRACEPT THEY MADE ME VERY SICK. MY HAIR FELL OUT AND I LOST ALL FEELING IN MY FEET AND LOWER HALF OF MY LEGS. MY DOCTOR AT THE TIME DID NOT INFORM OF THESE SEVERE SIDE EFFECTS IF HE HAD I WOULD NOT HAVE TAKEN THEM. THE PAIN IN MY FEET BECAME SO SEVERE I COULD NO LONGER WALK. I CHANGED DOCTORS AND I WAS THEN STARTED ON NEURONTIN. I WOULD LIKE TO DISCONTINUE THE DRUG BUT I AM FEARFUL THE PAIN WILL RETURN. ARE THERE ANY NERVE REGENERATION DRUGS AVAILABLE? I AM TRYING SOME HOMEOPATHY REMEDIES NOW THAT SEEM TO HELP BUT I AM NOT SURE WITHOUT STOPPING THE NEURONTIN. PLEASE HELP.
| Response from Dr. Henry
You don't mention whether you had previously been on other nucleoside reverse transcriptase inhibitors (Nukes or NRTIs). If not then you might consider switching from ddI/D4T to AZT/3TC (aka Combivir) +/- Ziagen. Those meds rarely result in neuropathy and would make it more likely that the neuropathy might get better. Some advise trying Ca, Mg, B1/B6/B12 supplements with L-carnitine, Co-enzyme Q and N-acetyl cysteine (see Jon Kaiser's book Healing HIV for doses). Hope that gives you a few ideas. KH
Keith Henry, M.D.
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