Dec 22, 2010
I received the answer to my last question about Sex after diagnosis....my next thought is 'how do I forgive myself for even getting infected....I have never been a talker about things that go on in my life, I try to handle them myself and deal with it alone. I am an only child and my adoptive mother is diseased now and I really don't have any substantial people in my life to call 'friends'. I have been so distraut about finding acceptance regarding this disease that has invaded my body, but most people look at you as nasty, dirty, and disgusting. I have done things in my past and just recently this year that I feel so guilty about and it is really messing with my mental state. I just recently started seeing a therapist and the first 2 sessions have been a little eye-opening. I just want to know when does the guilt stop? When can I forgive myself for being so stupid and contacting this disease when I was 90% of the time careful? I have been playing over and over in my mind as to who could have transferred this disease to me and it comes back too men that I have seen or heard from in almost 20yrs. I don't know where they are and even if they are still alive and living in the area. I have since had another child (the second from this man) and the father of that child says he is negative....how can this be? Why me? I have always felt myself as a beautiful woman and now I feel so ugly (once I accepted having this disease). I am currently living a lesbian life but still batteling with the idea of nobody is goin to love me & I will not ever have a true relationship. Lesbian women aren't that keen on having a relationship with an infected woman but men most the time are ok with it....I really hate my life rite now but I guess forgiveness would help get me on the rite path.
Response from Dr. Frascino
I am an HIV physician specialist, not a psychiatrist. I'm glad you are seeing a therapist and have found your first two sessions "eye-opening." I encourage you to continue with psychotherapy. That is the place to discuss your guilt, self-forgiveness, lack of self-esteem, lack of a support network, sexual orientation issues and the host of other issues you list in your question.
Is there a Sex Life after HIV? Dec 14, 2010
I have been diagnosed for over 12yrs now...I accepted it and then denied it...accepted...then denied again...now I am accepting it once and for the last time and I have just disclosed it to several people. My partner was the help of me disclosing it to others. I started this relationship this year in denial and just hoping that my status would miraculously disappear. I was caught with this devestating lie and had to reveal some things to my partner. This of course changed our relationship drastically. They have since been cleared of this virus with their first round of testing. (Thank God) Well, sex is an issue for me and I just wanted to know is there sex after diagnosis. I've heard of condoms, dental dam, simple fondeling,& grinding. I am at a sexual peek in my life and it seems to be getting stronger. My partner is extremely non-sexual (doesn't even want to talk or think about it) Masturbation is my only out right now and Im not getting my full satisfaction with that method. What can I do or say to ease my partners mind and help them to explore other options of intimacy. Should I find another partner that is maybe the same HIV strand as I am, or should I just forget about sex all together. I try to get it out of my mind but at 40yrs old my drive has increased the more and sometimes it sickens me because I have this disease. Who wants to be with an infected woman, sexually? What can I do to help ease these desires?
Response from Dr. Frascino
You've known about your HIV-positive status for 12 years and yet you started a new relationship this year "just hoping that (your) HIV-positive status would miraculously disappear"? What???? That goes a long way past denial and well into the realm of the unconscionable! You were subsequently caught in this devastating lie and had to "reveal some things" to your partner and this not unexpectedly drastically changed your relationship. Well of course it did. You were putting your partner's health and well-being in jeopardy. He will need HIV testing immediately and then again at the three- and six-month marks if you were having unprotected sex.
You ask if there is sex after an HIV diagnosis. The answer is yes, if you don't put others in harm's way. Before considering sex, I strongly suggest you seek psychological counseling to help you accept the reality of your HIV status and the absolute need to prevent potential further spread of the virus. You will need to start by informing all sexual partners with whom you have had unsafe sex over the past 12 years that you may have exposed them. If you don't have the courage to do so in person, you can use an anonymous-notification service, such as inspot. See below.
Next, you'll need to learn more about HIV-sexual prevention. Check out the information in the archives of this forum in the chapters on HIV-sexual prevention, HIV-sexual transmission and safer-sexual techniques. Also, check out the related links on this site.
It's essential you disclose your HIV-positive status to all potential sexual partners before having sex. We have an archival chapter on HIV-disclosure issues as well.
Regarding your partner, your selfish decision not to disclose your HIV status may well have destroyed the basis for trust and honesty that are essential in all successful relationships. Couples counseling could be considered, but the damage may be beyond repair. There is nothing you can "do or say to ease your partners mind and help him explore other options of intimacy" if he doesn't trust you or if he questions your veracity. You'll need to work on trying to restore basic honesty and trust as a first step in rebuilding your relationship.
You seem to be very focused on your desires and needs and not at all focused on your disease and potential harm to others. This is not healthy for you psychologically and potentially puts others at risk. If you're looking for a "healthy" sexually satisfying relationship, you'll need to re-prioritize your priorities.
Finally, I would suggest you review the information in the chapter in the archives dedicated to magnetic couples.
HIV guilt (DISCLOSURE, INSPOT.ORG, 2010 ) Oct 14, 2010
Dear Dr Frascino
I was diagnosed HIV+ in 2006 at the age of 19. My immediate reaction was to cease being an active participant in sex as I was, at that time, under the false impression that this radically reduced the risk of my infecting someone else.
Regrettably, I had 3 situations where I engaged in unsafe penetrative sex (as the passive partner). While I was always vocal about the fact that I strongly suggested using protection, all 3 of these guys were not interested in using protection (2 were also on drugs).
Since then, the thought that I might have infected them has been weighing heavily on my conscience to the point that I have developed panic attacks and bouts of depression. My therapist has tried to assure me that if they were prepared to take that risk with me, I was most likely not the first and that I should relax.
Truth is, I can't. Even though my viral load has never been below 4000, I find myself in the throes of intense panic. Even now, 3 years since the last such encounter.
I have since begun treatment (due to recurrent enteritis and chronic fatigue) and I am reacting very well. Undetectable viral load and CD4 on the increase. I have enjoyed 2 1/2 years with the most wonderful HIV- partner. However, my life seems to be in the shadow of these encounters. While it angers me that their stupid decisions are causing me such grief, I just cannot be content.
After the public display in Germany recently of criminal HIV transmission, things have just worsened.
I am not entirely sure what I am asking you but I am at my wits end and do not know how to go on.
Response from Dr. Frascino
You characterized your problem well when you wrote: "I am not entirely sure what I am asking you but I am at my wits end and do not know how to go on" and ". . . I have developed panic attacks and bouts of depression." Clearly anxiety and depression are why you are "at wits end." You link those problems to "HIV guilt related to three bouts of unsafe sex. These lapses in judgment cannot be undone. (If you are still in contact with these guys, you could advise them they have had an HIV exposure and should get checked. This can be done anonymously. See below.) I absolutely agree with your therapist that it takes two to do an unsafe dance with no pants. Your partners share at least equal responsibility. Your focus on these three incidents from your past may not be the real issue here. Anxiety and depression are clinical syndromes in and of themselves. Your anxiety and depression are presently not being adequately managed r adequately treated. I would advise you talk with your HIV specialist to see if a more thorough evaluation and more aggressive treatment are warranted. You may well need to see a psychiatrist (M.D.) rather than a non-M.D. therapist. The psychiatrist can prescribe anti-anxiety and anti-depression medicaments, which may well be extremely beneficial in getting your life out of "the shadow of these encounters." No one can undo the past, but you can take responsibility for today and the future.
Witholding the truth? (DISCLOSURE, INSPOT.ORG, 2009 ) Nov 4, 2009 Last weekend, I went to a great Halloween party with a bunch of friends, and we all got pretty drunk. I remember what happened most of the night, but there are some details that I do not remember. One of the things that I do remember was meeting this good looking guy. I recall flirting, dancing, and getting in a cab with him. We went back to his place; we got naked; we started fooling around. The guy asked me if he could fuck me. I said yes. He then asked me if I was healthy. I hesitated for a second, and then said, yes. I thought, well, I AM healthy. I am a healthy HIV positive person-- but deep inside I knew he was really asking me about my HIV status. He took out a condom, and I put it on him. He fucked me pretty hard. The condom broke I learned the next morning. I blacked out a couple of times througout the night.
When I woke up the next morning, it took me a few minutes to adjust and recognize the person next to me and the place I was in. Forget his name. I had to look at the address label on one of his magazines in the bathroom to remember his name.
Finally, it all started to come back. Panic settled. Once sober, I realized I had not beencompletelyhonest with this guy. I was mortified. I had justified my answer with the notion that I was indeed healthy not sickbut I wasnt (not according to his vocabulary) Now he was telling me about the condom breaking.
I felt like such an a**hole. He was being honest and responsible. He told me what happened with the condom; he told me again that he was healthy and that he had recently been tested; He asked me again if I was healthy. This time I mumbled no. My answer was either not heard or was confused with another question I did my best to cross-talk, and was able to change the subject before he could ask again. I thought, ok, one-night stand, get dress, move, leave before he asks more questions. But before I got to the door he asked me if he could see me again. I wanted to say no, but like a moron I said sure. I did like him, but whatever chance I had to get to know this person was now ruined. I wrote my email address on a piece of paper and left. When I got home I was overwhelmed with sadness and guilt. Ive been having a hard time sleeping ever since. I know we tried to protect ourselves I know the chances for infection are very small, but still, who in the hell am I to decide about his (or anybody elses) health? He had the right to know. I feel that I was as reckless as a drunk driver.
Couple of days later, he wrote. He told me he had a great time. He wants to get together again. I know the simplest thing to do is say no or ignore him. My friends tell me to shut my mouth. That it is too late. I would make things worse if I talk now. So this is my dilemma. Should I remain silent and hope that nothing bad happens (to his health)? Or Should I come clean and tell him the truth? Forget about developing any type of friendship with this guy. Ill be lucky if he doesnt punch me in the face.
With this experience, I realize how deeply ashamed I still am of my HIV status. I am still very angry at myself for having been infected. I crave acceptance and fear rejection so much that I put myself in these difficult situations. I thought I was a decent person, but with this experience I feel as if I have lost my morals and sense of decency. Am I being overdramatic? Perhaps. But I am deeply disturbed about my behavior. I dont have the right to decide for others. As for my drinking, well, I guess that doesnt help either.
Any words of wisdow would be truly appreciated.
Response from Dr. Frascino
Disclosure is never easy. You certainly are not alone in fearing rejection and craving acceptance.
I agree that your deception was wrong; however, I do not believe you have lost your morals or sense of decency. Your intense guilt is testament to your basic moral character.
What should you do now? I think you already know the answer. I do not agree with your friends! If the situation were reversed, wouldn't you want to know the truth? I believe you need to come clean, admit your mistake and accept the consequences of your actions. A face-to-face meeting with a sincere apology would be best; however, if you can't muster up the courage for a personal interaction, you should at least notify him anonymously via an anonymous partner-notification program. "Inspot" works well. See below. Leveling with your Halloween trick is not only the best way to deal with your guilt; it's also the right thing to do.
How do I anonymously tell a partner I may have exposed him to an STD??? (INSPOT.ORG) May 5, 2009
HELP!!!! I did something stupid and now I've got syphlis!!!! I'm still waiting for my HIV test!!! What really worries me is that I've had sex with several friends and we sort of forgot to use a condom. But I know these guys really well and know they are healthy and usually play safe. I just can't tell them in person that I have syphilis and my health department wants to know my name. I don't trust them to keep the information confidential if I give them these guys names. HELP!!!!!!!!!!!!!!!!
Response from Dr. Frascino
Hi Too-Embarrassed-To-Tell-Them Guy,
You sort of forgot to use a condom???????? Hmmmmm.....Early Alzheimer's I presume, right? Otherwise I'm sure you wouldn't take such a risk. (Learning a lesson like this the hard way is indeed painful and I'm not only talking about the walloping dose of penicillin that's going to be injected into your butt, either! I'm hopeful your experience will make others think twice before "sort of forgetting to use a condom", even with friends.)
Actually there is a way to notify your contacts! Check out the Web site called InSpot.org. There you can send an anonymous e-mail to your sexual partners advising them they may have been exposed to an STD. Yes, it's truly anonymous and cannot be traced back to you. There are a variety of very simple messages to send. My favorite is "I got screwed while screwing, you might have too." Dr. Bob says, "Check it out!" Don't delay! Your contacts need to be told and treated ASAP!
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