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Finding the motivation to continue..
Jul 30, 1997
I am very lucky. I'm taking the triple combination therapy and have an
undetectable viral load as well as many new T-cells! However there is lots of
loss in my past. A few years ago I lost my lover of eight years and a few
weeks before I lost my best friend. In one year alone--1994--I lost more than
13 close friends. Now that I'm facing the possibility of survival, I struggle
with the reasons why and lack the motivation to continue. How will I get over
the loss of so many people I love and be able to get on with my life? There
are, I'm sure, many people out there in my situation, but in my town it's
very hard to get people together in support groups. I am wondering what
advice can be given to people in my situation, and how I can connect with
them. Thank you.
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Response from Mr. Shernoff

You indeed are both very lucky and at the same time, like any other survivor
of a catastrophe, devastated by the enormity of the losses you have
sustained. Like you I too have benefitted from the new triple combination
and also buried my beloved partner almost three years ago, as well as an
entire friendship network of men I had hoped to grow old with.
I often am angry that these new medical break throughs did not happen sooner
to benefit more people I loved who died before they were available. You ask
how do you get over the loss of so many people? The answer to that is, I
believe, that we do not. We learn how to adjust to life with out these
people and accommodate the empty places in our hearts and souls that their
deaths leave behind. There is a line in Carousel where one of the angels
tells Billy Bigelow: "As long as there is one person left alive who remembers
you, you are not really dead." Part of how we continue to live and survive
is to wear witness to those lives of people who have predeceased us. We need
to celebrate their existences and at the same time that by living fully, we
celebrate our own. They would want us to continue to live, be well and even
rediscover love and happiness.
There is no answer to why we have survived long enough to benefit from these
treatments. Some of it is just blind luck. I would urge you to seek out
AIDS chat lines on the internet and seek out discussions with other
survivors. By making connections with them and sharing in each others
experiences there are lessons to be shared, hope and inspiration to be
gained. It will certainly not be without continued pain and sadness. Yet
those are components of life.
Michael
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