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Coping with still being alive!
Aug 6, 1997
The psychological issues related to being alive long past expectations from a
few years ago are immense. Could you relate some of the major issues you've
encountered in your counseling experience that have emerged in the 1970s that
weren't issues, say, 5 years ago?
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Response from Mr. Shernoff

I assume that there was a typo and you meant the new issues that have emerged
in the 1990s that were not issues 5 years ago? There is now a whole host of
issues that have to do with balancing hope in the face of the new combination
therapies. In addition some people have to manage their despair if they are
one of the approximately 30% of people for whom the combination therapies do
not work or who can not tolerate the side effects of them. For newly
infected people, or for those just finding out that they are HIV positive,
there is the entire question of: Do I immediately begin triple combination
therapy now and begin to use up my treatment options by hitting the disease
hard and hitting it early? or do I wait until my viral loads suggest that I
should begin the therapy? With their not being any uniform correct medical
answer to this very vexing question, people have to be able to tolerate an
excruciating uncertainty and really educate themselves so that they are
comfortable with what ever course of treatment or inaction they decide to
take.
Many of us who have benefitted from the combinations are very angry and sad
that these have arrived too late to have benefitted loved ones who are
already dead. In addition, there is just much more uncertainty now than
earlier. We do not know how long the new treatments will remain effective.
Several of my patients have described their renewed health as being like
having a reprieve from a death sentence. Accompanying the joy of a
renaissance of health comes the need to grapple with issues that people
thought they would never have to face again. There are many people who went
into enormous debt expecting to die soon and now they can not afford their
debt loads. Thousands of people with HIV and AIDS are also wrestling with
questions about whether or not to return to work since their health has
improved so much. Issues about dating, relationships and being sexually
active are also all coming up for people who had put these issues aside long
ago.
-- Michael Shernoff
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