Losing my sweetheart a piece at a time
Sep 28, 1998
My partner of >15 years is in the hospital tonight. He's had a mild stroke, has AIDS Dementia Complex, and nearly died last winter from PCP. He's been home only 6 months from a specialized nursing facility
I came home from work yesterday and noticed how slow he was--cognitively and physically. That morning at breakfast, he was chipper and excited and had plans for the day. I took him to the ER last night. Tonight is the second night he's been in the hospital.
They've ruled out stroke, lymphoma, and toxo. But they haven't ruled out PML or further brain damage from HIV. I feel like this is the beginning of the end for my sweetheart. The man I love most in the world and find myself missing tonight.
Although in some ways, it is merciful if he were to die (he wants to sometimes). He's lost so much (so have I) and he is aware of how much he's lost. He's had major central nervous system damage, cognitive loss, and personality changes.
We won't know anything until tomorrow after more test results are in.
In in a strange way, I am remarkably peaceful tonight. In some ways, I'm ready to move on. I feel guilty sometimes about these feelings. But I find myself not wanting to spend the rest of my life living this way. Yet I love him now more than ever.
He's also peaceful tonight and I am glad for that. He described going to the hospital as "something different, kind of an excursion that you have fun with, got me out of the house." He also said he was bored and sore from the tests and that he sees how hard this is for me.
It's not life-threatening right now, but I feel the dream of growing old together slipping away bit by bit. Long-term doesn't looke very good right now. I'm afraid. I feel like I'm losing him a piece at a time.
|