Re: I thought HIV doesn't equal AIDS...not in my case!
Dec 24, 2014
Hi Dr. Young,
Thank you very much for your prompt response considering the holidays.
As you've correctly guessed, I've been taking Bactrim (which was prescribed yesterday) and made my dry cough virtually disappear and breathing easier. I currently feel pretty well apart from my PCP which Bactrim is helping and constant thirst, and slight loss of appetite.
I forgot to mention, on the same day of my confirmatory diagnosis yesterday, they also took blood to understand my strain/CD4 etc. I will go back to the hospital to meet with Thai doctor this Friday and find out where my viral stats stand. Would you recommend I start ART immediately? Buy a few months worth of ART for my trip back to Shanghai? Does it work like that? Should I be taking both PCP drugs and ART at the same time? I understand in most cases PCP should be treated first but as you've pointed out my case is very serious.
If I recover from PCP and my viral load is low and CD4 is normal, do I drop back down to HIV stage? Or once you get an AIDS defining illness (even if you recover fully) youI now have AIDS not HIV is this correct? Now that I have AIDS, does this mean my life expectation is low and my immune system is unreputably damaged?
This is very hard to accept...I can't even comprehend it all myself yet. How can I tell my loved ones about my status? They say HIV is not a death sentence but it really isn't feeling like that for me right now...sigh.
I will most definitely take your advice and reach out to ANP+ as I'll be in BKK starting on the 27th.
Really appreciate your advice. Thank you very much. Merry Christmas
Response from Dr. Young
Hello and good to hear back from you.
Sounds like if you have PCP, it's a relatively mild case, on the best treatment and those are terrifically good things. Good to hear that you'll reach out to our friends at ANP+.
As for when to start ART, the answer is as soon as feasible, and if possible, well before you complete the three week treatment for PCP. The notion of waiting is old testament; and several large clinical studies have shown survival (ie., life and death) benefit in staring ART as soon as possible.
There's no problem in taking both Bactrim and ART, hundreds of thousands of people do just that. If it is agreeable to you and your Thai doctor, then yes, you could buy a few months of medications (including lower dose Bactrim to prevent PCP reoccurrence after completing the treatment phase) to bring back to Shanghai.
Regarding your diagnosis, if your CD4 count rises to above 200, your risk of AIDS complications becomes very low, but medically speaking, we still retain the AIDS diagnosis. This is a bit semantical, but convention. There will always be health concerns, and the need to be mindful of the special issues related to healthy aging with HIV, but those are issues to worry about a little bit later.
People who are able to have access to medications and care have life expectancies that are near normal- and if anything improving further with time.
I hope that's helpful. Best of health to you, BY
Lastly, disclosure can be a tricky thing, loaded with issues of stigma, discrimination and intimacy. It's generally helpful to have someone you trust know your status, but it's also (IMHO) not required that the whole world know. What I would advise you to tell those trusted persons is that you do have HIV/AIDS, but your doing ok, on good treatment and will be ok. HIV need not be the death sentence it once was, and on treatment with an undetectable HIV level in your blood, it's virtually impossible to transmit the virus to others.
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