Thanks for choice of meds answer
Mar 1, 2013
Thanks so much for your answer to my question re HAND and CNS penetrative meds.
I had a spinal fluid test when I first saw the neurologist a few years ago, but none since. The test did not show virus in the fluid.
I have stopped the double dose of abacavir as I can't see any basis for taking it. Am thinking of stopping the miraviroc as it seems overkill too. Just had another blood test. Still undetectable and 890 CD4s. Mental functioning ok.
22 years poz and I work full-time as a lawyer, so I can't really complain. I guess my most irritating problem is peripheral neuropathy, which affects my piano playing. I guess there is nothing that can improve that?
Response from Dr. Young
HI Simon and good to hear back from you.
Peripheral neuropathy can be a real bother-- sometimes frankly debilitating and often without great treatment.
Assuming that your excellent care providers haven't found a reversible medical cause (like certain vitamin deficiencies or diabetes), analgesics (even narcotics, if needed) or medications like Neurontin can sometimes be helpful.
Some patients appear to benefit from vitamin B12 (though I'm not convinced) or acupuncture.
At a minimum, make sure that you dialog with your neurologists to make sure that we've got the right diagnosis and optimal therapies.
Good luck and stay in touch, BY
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