Dec 21, 2005
I am a physician who was newly diagnosed with PML and AIDS 3 yrs ago. My counts were 0-3. I was treatment naiive and started on sustiva and combivir. My symptoms abated quickly. and I finally returned to work 4 months ago. I started reading about PML today and got discouraged when I read that most people die within a year. Right now my counts are 625/ non detectable. Are there any pearls you could give me.
Response from Dr. Young
Thanks for your post and questions--
Like a previous post, I think that your statistics on PML are from the pre-HAART era, when PML was a devastating diagnosis. Most of my PML patients were offered hospice care and had a very rapid disease progression.
Fast forward to 2005, my PML patients are all, like you, experiencing marked improvement-- most without any long-term residual symptoms. With your counts increased from 0 to 600, I can't imagine that you should be at any significant risk of retrogression.
WIth that, have a happy and healthy new year. Drop us a note at the end of year 4-- I'm sure that your experiences will be instructive and inspiring to those more recently diagnosed. BY
Are my meds working well?
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