stop med... ?
Sep 21, 2005
dear doc i have been discovered hiv+ in november 2003 ( i was very well till september 2003 i could have never thought to be hiv+.. i started loosing weight in october 2003 and in november they told me i was hiv+ with a lymphona non hodgkin 5 cm diameter in the leaver.. cd4 10 viral load over 1.000.000.. it was a shock.. i started immediately kaletra epivir and zerit... after 2 weeks my viral load was undectable.. cd4 over 700...the doc told me .. it is like a miracle.. on december 10 i started chemiotherapy for lymphona non hodgkin...plus rituximab.. after 3 months...no more lymphona in my leaver...during chemiotherapy cd 4 drop down very slowly and no viremia... after one year .. in november 2004 i decide to take only kaletra and epivir no more zerit witout telling my doc( i was afraid to waste my face)..cd4 900/1000 ratio 45% 60% cd4/cd8 ) after 4 months in march 2005 i decide to take only kaletra twice a day...cd4 over 1000 no viremia ratio 70% in june i deceided without telling my doc to take only kaletra one day yes and the other day no... in august cd4 1000 no viremia ratio over 80% the MRI confirmed no more lymphona.... i think to stop to take any medicine... WHAT DO YOU THINK? I M FEELING VERY VERY WELL
Response from Dr. Young
Thanks for your post.
In patients with a history of HIV-related cancers, I'm generally very reluctant to recommend stopping antiretroviral treatments because of the possibility of tumor recurrence.
Additionally, I think that your situation highlights the need for doctors and patients to develop good communications skills. Your dosing scheme is highly unconventional, and while your viral load is thankfully undetectable, I think that you may be risking a lot to take Kaletra every other day. Apprehension about the risk of side effects, like fat loss are important things to discuss; there are quite a number of acceptable alternatives that are well tolerated, potent and have been studied in clinical trials.
I'd suggest talking to your doctor about these options.
Good luck, BY
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