The Body: The Complete HIV/AIDS Resource
Follow Us Follow Us on Facebook Follow Us on Twitter Download Our App 
Professionals >> Visit The Body PROThe Body en Espanol
Ask the Experts About

Choosing Your MedsChoosing Your Meds
Rollover images to visit our other forums!
  • Email Email
  • Glossary Glossary

aren't I sort of entitled to this?
Feb 2, 2004

Is it a person's right to take any drug he or she desires in a time of illness? I have a severe myopathic syndrome that I believe was transmitted to me sexually, but that my doctor thinks was not. My health is declining fast along with my body. Being as I am sexually linked to a string of people with a similar syndrome but who test negative for HIV, I would like to try a round of HIV meds just to see if the properties of the drugs can inhibit what I believe is an infectious agent in my body. I'm going to die anyway at the rate I am deteriorating. What could it hurt to allow me to try these various inhibitors on a trial basis? If the side effects are too much for me to handle, I can stop. If I find them to be well tolerated, but my syndrome still continues, I can stop. If the syndrome stops after initiating therapy, one of two things would be brought to light. Either it would prove I have an infectious agent replicating and causing my problems, and that I am lucky enough to benefit from the broad effects of HIV meds, or, the entire recovery would be purely a placebo effect. If the truth were that it was a placebo effect, wouldn't that be better than my already poor prognosis? I want to live, and I am willing to try anything.

Response from Dr. Wohl

I can certainly understand your willingness to try anything to feel better but this seems like this is a discussion you need to have with a clinician. This forum is dedicated to answering the questions and concerns of HIV-infected persons who have or are considering starting HIV medications. DW

Medical nasal spray in clinical trial to flush out HIV
beginning therapy with low viral load

  • Email Email
  • Glossary Glossary



This forum is designed for educational purposes only, and experts are not rendering medical, mental health, legal or other professional advice or services. If you have or suspect you may have a medical, mental health, legal or other problem that requires advice, consult your own caregiver, attorney or other qualified professional.

Experts appearing on this page are independent and are solely responsible for editing and fact-checking their material. Neither nor any advertiser is the publisher or speaker of posted visitors' questions or the experts' material.

Review our complete terms of use and copyright notice.

Powered by ExpertViewpoint