Jan 28, 2007
I've had both HIV/HepC for around 25+/- years. Never had AIDS and my docs say at the worst I am in stage 1 Hep C and have been there for a long time, possibly just having an inactive virus. Okay, my question is, I have outrageous fatigue. I mean, my t-cells can be up around 1000 and I am still tired... no one knows why. One idea is the brain viral load the other would be the Hep C. No one seems to know and because I am not sick, I guess it's not a big concern. MY question is, would it be worth going off HIV meds and suffering with interferon to possibly get rid of the fatigue? My docs never seem to have a definitive answer... usually the answer is, since you are stable, why bother? I would LIKE to have a job! I feel silly with counts that high and always having to take naps and lay around.
Response from Dr. McGovern
It is completely reasonable to try a course of pegylated interferon alfa 2a plus ribavirin and see if your virus responds. I would check your viral load before treatment, one month into treatment, and at 12 weeks. If the response is good, then continue. If no response, I would stop since you do not have significant liver disease.
I would also check for autoimmune diseases and thyroid diseases which can cause significant fatigue.
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