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Caffeinne: good for Fatigue, bad for Neuropathy?
Oct 10, 2006


First off, Thank You for supporting all of us through the rough times. About me, poz for a year, not on meds. Now, I've come to rely on caffeinne as my main ally in my constant battle with the fatigue that comes with our condition, however I also have neuropathy and have read that caffeinne could be hurting me on that front. Does caffeinne actually accelerate neuropathy progression and nerve damage or does it just agitate the already damaged nerves and worsen the symptoms temporarily? Right now I'm doing a balancing act, using caffeinne to treat my fatigue and ibuprofen to help with the neuropathy. I keep thinking there has to be a better way. Should I stop with the caffeinne, and if so where do I turn from there for my fatigue? I can't say that I want to be on any meds yet but will do what's needed.

Thanks again for all the help

Response from Dr. Frascino


First off, I'm not aware of any information that indicates caffeine accelerates distal sensory polyneuropathy.

Next, you've been poz for a year and I'm assuming your "numbers" are still decent enough that HAART isn't indicated yet, right? So, are you sure you have HIV-associated distal sensory neuropathy? Perhaps a visit to an HIV-knowledgeable neurologist could clarify this point. Neurologists are also pain specialists and could tell you the best way to cure or control your discomfort, whatever the cause.

Next, why are you fatigued? There are a whole host of potential causes of HIV-related fatigue. I would suggest you try to find out the underlying cause of what's zapping your zip and then specifically treat that problem. Treating the underlying cause of any problem is always better than just trying to control the symptoms of that problem.

Take a read through the archives of the Anemia/Fatigue forum and make a list of all the common causes of HIV-associated fatigue. Then bring the list in and discuss it with your HIV specialist.

Your caffeine intake may not go down, but at least you'll be slurping double espressos because you want to, not to prevent becoming Rip Van Winkle.

Good luck.

Dr. Bob

Fatigue again
Re: Is It Just Me?

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