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Please help one last time I beg of you Cryptosporidium - Follow up
Jan 20, 2003

The reason why I said that you think I have HIV is because I mailed you previously and then requested follow up info due to the ongoing symptoms and you did not reply. Please tell me what to do as I am lost. Below is the first mail I sent with your response, since then I have had swollen glands in the neck, back of head, behind ears with rashes on ears, arms. Neuropathy in hands and feet including thigh's going numb and Cryptosporidium. Please tell me what to do as I am convinced that I have a rare or new strain of HIV that is not being picked up considering all the symptoms I am experiencing.

Hi Doc

Firstly i would like to say that you are the greatest. I find that you answer our questions to the T. Your knowledge and optimism has kept me going every day through the last 6 months. Daily when I log on to THEBODY I visit your page first as your insight is an inpspiration to all of us.

Previous Question I am from South Africa. Anyway I would like to find out if I can WOO-HOO if my results are negative as I am taking my 24 week test on Teusday. This is my horror movie. I had a high risk exposure 24 weeks ago. experienced all symtoms i.e. 4 weeks diarrhea, muscle, joint aches, gastro problems, rashes throughout the 24 weeks. Painful lymh nodes in armpits and groin yet not swollen wich I'm still expeirencing till today, fatigue, pain in arms etc. I have tested Qualitative PCR 5,9,13,17 weeks. Quantitave BDNA 10 weeks and several ELISA up to 17 weeks and all negative. Currently still expeirencing Neuropathy in hands, wrists, and feet i.e. pins and needles, leg going numb and pain in wrists, fingers and feet. My question is 1. if my 24 week Elisa uis begative can I WOO-HOO and should I do another PCR along with the ELISA. 2. What are the oods that I will be positive based on my previous test. 3. If someone seroconverts lets say at 6 months would a PCR be positive in the first few weeks of exposure. 4. If I am negative and since I have done a million other tests for STDS and other viruses and spent in excess of 15 thousand rands in medical bills. What could be cuasing the fatigue,rashes, lymph pain and neuropathy that I am still experiencing.

Thank you from the bottom of my heart and please let me know how I can send a donation to yourselves all the way from South Africa. To all you hiv positive people remember GOD loves you and is always with you.

I little poem I made up. AIDS is a disease that could bring you to your knees. But if you are strong you can live for very long its now time to look after yourself or else the virus will destroy your health. Lets keep ourselves pure and I'm sure we will find a cure.

Answer You log onto my site every day? Oh my, that's more than I do and I'm supposed to be the expert.

As for your "horror movie" questions:

1. Can you WOO-HOO if your 24-week ELISA is negative? Absolutely! That test is absolutely conclusive. 2. The odds you will be positive after having negative PCRs at 5, 9, 13, 17 weeks, negative BDNA at 10 weeks, and "several" negative ELISA's up to 17 weeks? Well, do you use the expression "snowball's chance in Hell" in South Africa? Another way of putting it is that your chances of being HIV-positive are zero, zip, zilch, nada! OK? 3. Yes, most likely the PCR would be positive. 4. The cause of your symptoms? Well, I really can't diagnose that over the Internet, not without the benefit of examining you and your "million other tests." However, what I can conclusively say is that it's NOT HIV! There are many causes for fatigue, rashes, sore lymph nodes, and discomfort in your hands and feet other than STD's! A general medical physician should be able to sort this out for you. Certainly, stress and anxiety over possible HIV infection (not to mention depression over spending 15 thousand rands on medical bills) could be a significant factor. If a good internist checks you over and gives you the all-clear from a medical standpoint, you should strongly consider seeking the help of a therapist to help you cope with your irrational concerns over HIV infection

once again based on the symptoms I am displaying what else couls it be if not HIV. My HIV doctor wants to run a special test wherby they take my T-Cells and feed the virus to it and see how it reacts. Apparently there are some prostitutes in Kenya that are HIV infected despite being sero-negative and PCR negative.

Once again many thanks

Response from Dr. Frascino

Hello again.

Thanks for reposting my reply to your first question. My advice to you remains exactly the same. You remain "convinced that you have a rare or new strain of HIV that is not being picked up." I, on the other hand, remain convinced you do not have HIV and you need to look elsewhere for the cause of your problems if you ever expect to get better. Continuing to search for something you could not possibly have is illogical and bound to be quite frustrating, as well as certainly unrewarding! So re-read my advice.

Briefly:

1. You do not have HIV (rare, new, old, or any other kind). 2. I cannot diagnose the cause of your non-HIV-related symptoms over the Internet. See a good general medical physician. If he/she says nothing is wrong physically, then seek psychological counseling for your fixation on non-existent HIV.

Having your doctor run further special tests on your T-cells is a colossal waste of money in my opinion.

Sorry if this is not the response you were looking for. It is, however, what I believe to be true.

Good luck. Hope you are better soon.

Dr. Bob


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