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I've had lymphoma and now I have painful lymph nodes.
Apr 4, 2002

I have had non-Hodgkin's lymphoma (NHL) and recently on my right lower neck I have very painful lymph nodes, no fever, no nightsweats. I don't feel sick as i did with NHL. Is it true that hard painful lymphnodes are not lymphoma, but generally body fighting off infection. I was a bit nervous 3 weeks ago and had a negative Gallium scan, negative head,chest,abdomen,pelvic CT, Bone marrow negative for NHL, Chest X-ray clear, just a bit worried.Thank you

Response from Dr. Dezube

It's not always easy to be a lymphoma survivor. The fear and terror that the lymphoma will come back is felt by virtually every lymphoma survivor at some point. Your nervousness is certainly understandable. My suspicion is that you do NOT have lymphoma if you have had a negative gallium scan, bone marrow examination, and CT scans. Obviously I can't give you a guarantee, though time will tell. I am not aware of any way of knowing what's inside a lymph node simply by feeling it (i.e., having a hard painful lymph node does not necessarily mean it does not contain lymphoma). However, that lymph node probably does not contain lymphoma if the gallium scan was negative. If it contained lymphoma, then it should have lit up on the gallium scan.


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